@auntieoakley
Thank you for reaching out. I was disgnosed with MGUS IgG lamda in June 2023 , SMM in May 2025 and MM in March 2026. I have had 2 bmb, PT CT scan and 2 pelvic MrI’s in past 9 months. I had an appointment january 13 with my hematologist/oncologist to discuss treatment for SMM and getting a second opinion on treatment options because of my history of DVT, Stroke and Leiden Factor V discovered the summer of 2023. My doctor sent me to the ER because of a large swelling in my neck and I was hospitalized for 13 days in January for a rare abscess in my neck caused by streptococcus pneumoniae .

During my stay they uncovered a small PE in my lung, a spot on my left kidney and two leaky valves in my heart. At the time it was overwhelming but I am grateful for the experience because a follow up MRI of my kidney and pelvic region showed that instead of 2 pelvic focal enhancements I now have 10 with the largest being 2.2 cm. I slso have a mass on my left kidney suspicioss of renal cell carcinoma . My m protein increase 33% since December 2.

I have a full body NM PET scan This Friday to address all my isdues but they have ordered Daratumumab/Darvalex for first infusion to see how my body reacts. There is a concern about adding Revlid because of my inherited thrombosis.

I have been cycling between grief and the strength if a warrior goddess. I am 60 with a loving spouse, family children and grandchildren. My goal is to live to 104. I am struggling with the speed of which this transition occurred but trying to becstrong for those who love me while screaming on the inside. I have all of my medical records organized and I have researched this disease and treatment for the past two years as my energy wained.

I have no idea how I will react to treatment but I feel confident in my care team that they are all well versed in all of my underlying conditions. Thank you for reaching out. I am praying for good results.