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MAC & Bronchiectasis | Last Active: Mar 7 12:43pm | Replies (7)
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Replies to "@sueinmn I have mycobacteria absessus. Since this is so rare please give me the name of..."
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@vickihhh There is no one "best place" unless you are talking about going to National Jewish Hospital (NJH) in Denver for a workup and treatment plan. You will still need a local pulmonologist, and possibly an infectious disease (ID) doctor to manage your day-to-day treatment. That depends on where you live, and what insurance you have. Here is a list of the Bronchiectasis Centers that have expertise in treating us:
https://connect.mayoclinic.org/discussion/the-bronchiectasis-care-center-network-33-centers/
If there is not one listed near you, you can begin by searching major medical networks in your area for pulmonologists, and read each bio - they will list bronchiectasis or infections if they regularly treat them.
Do you have a good pulmonologist now? How was your infection discovered?