← Return to HCM-ers: Introduce yourself or just say hi

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@thehellyousay ,

Good morning! It is scary to find out you have HCM. I was diagnosed at age 78, and like you was healthy and had no issues except was having palpitations, I have Apical HCM (non-obstructive). Since I was first diagnosed my HCM has progressed. I developed symptomatic Afib and my hypertrophy has increased and I have a great deal of diastolic dysfunction.

We all are different when it comes to this disease, so it is important to see a cardiologist who sees a large volume of HCM patients. Do you see a local cardiologist or are you able to go to a COE (Center of Excellence) with a HCM Clinic? I travel about 5 hours to the HCM Clinic at Mayo. Have had a wonderful experience there. I suggest you check out the website for the Hypertrophic Cardiomyopathy Association. They have a web page and a Facebook page. Lots of information and a list of all COEs. If you join, you will have an hour intake call which is a great help. This journey is different for all of us and it is important to have a care team that really understands this disease. Good luck with you HCM journey.

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Replies to "@thehellyousay , Good morning! It is scary to find out you have HCM. I was diagnosed..."

@emo44 I have just moved away from Optum to a smaller health care organization - Western Washington Medical Group. They are affiliated with Medicare. I'm in the Seattle area, so access to lots of doctors and hospitals that are probably a Center of Excellence. My cardiologist is a pretty young guy, emigrated from Thailand, although I am not sure where he went to school. He seems pretty sharp...

I guess the MRI will give him the information he needs. The terminology is overwhelming, I will try to find info from the web pages you've recommended. Thank you!