@susanp2139 hello Susan, my best advice came from a man named Mike Katz who lived, I believe, 27 years with myeloma. His advice was to get organized, not in all of life but for myeloma testing and treatment. I met him when he was an advocate for the international myeloma foundation.
My husband has lived 16 years with myeloma and I still have to recount information about his past treatments and testing fairly frequently. Just the ever changing meds and doses can be challenging.
My husband was diagnosed with full blown myeloma with lytic lesions as well. MGUS and smoldering myeloma are the precursor to myeloma and a lot of people now are diagnosed with those, but that won’t always lead to myeloma.
You said you are starting treatment on the 9th, what treatments are planned? Did you seek out a specialty clinic or doctor?