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Myeloma newly diagnosed

Blood Cancers & Disorders | Last Active: 4 days ago | Replies (50)

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Profile picture for Ginger, Volunteer Mentor @gingerw

@susanp2139 Welcome to Mayo Clinic Connect. You will find a great group of people here to support you and answer questions based on our own experiences.

Be gentle on yourself. Please don't "awfulize" things. While we may have the same or similar diagnoses, we are each unique persons. What works for one may not work for another. Rest when you need to rest. Follow your medical team's advice and instructions. Keep a journal if you'd like, of your symptoms, how you are coping, etc. Ask questions if you don't understand something. Focus on the positive.

Yep, that's a lot of things, isn't it? How long ago were you diagnosed with MGUS or SMM?
Ginger

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Replies to "@susanp2139 Welcome to Mayo Clinic Connect. You will find a great group of people here to..."

@gingerw
Weird thing. I was in a car accident. I swerved to avoid a deer and ended up totaling my car and going to the Emergency Room. Ct scans showed lesions on my skull and neck. Well….. yes the deer was my guardian angel . I did all the tests, got two opinions and was diagnosed in February. I begin treatment in March 9th. The diagnosis is multiple myeloma. I have been journaling, meditating and a whole lot of praying. Every step towards treatment causes me angst. And then I get through it and I feel better. I don’t always feel positive. Sometimes I’m angry and sad.
Sue