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Polycythemia Vera and low iron
Blood Cancers & Disorders | Last Active: Jun 12 12:22pm | Replies (34)Comment receiving replies
The low iron level is a sore point with all of us PVers. At 75 yrs old, I find that an afternoon nap (about 45 mins) is a must for me to get through a 15 hr day. I wish I could tell you there is a distinct pattern to this disease but I can't find one. My WBCs go down. My WBCs go up. My platelets go up. My platelets remain the same.
I wish there was a magic bullet for this thing, but I have not found it yet.
The skin cancer complications with the drugs is annoying. I have had a total of 10 MOHS procedures now.
Hang in there. Its a "marathon not a sprint".
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@livingston44 Have you had skin cancer from taking HydroxyUrea? My doctor wants me to switch medications and take Jakafi. I’m 72 and diagnosed three years ago. Told the phlebotomies have causes my low iron. Jakafi will not help with low iron I understand. Have you switched medications this soon and did it help with fatigue and fewer phlebotomies?