@rosemarya Thankfully I do not have tremors after my medication, but interestingly my hands shook a lot before my transplant. Any pictures I took then are blurry. I had that for about 10 years (my hepatologist, without that knowledge, said I probably had cirrhosis for 10 years because the revealing symptoms do not present themselves for awhile). My shaky hands were diagnosed as "essential tremor". Since that symptom is now gone it was obviously from the cirrhosis. They watch for hands "flapping" which is a stronger variation of trembling but mine never got that far.
JK

@contentandwell Regarding post transplant trembling, I am not sure if the immunosuppressants are responsible or not. My trembling occurs at any time of the day and at different levels of intensity. There is no direct correlation with when I have taken my meds. I believe my trembling is probably from autonomic neuropathy. I can sometimes still my hands with intention well enough to thread a needle, so I am happy for that. I guess it concerns other people more than it does me, so that gives me a chuckle.

@2011panc, I am so thankful to not have trembling hands anymore. Some days it was difficult to raise a cup of coffee tea to my mouth.
I rarely tremble anymore.
JK

@2011panc, @contentandwell
I have the trembles. They usually occur 1-2 hours after my morning meds. Some days they are more noticeable than other days. That is when I have to forego any hand writing, or tiny sewing projects.
Here's a chuckle for you! I picked up my violin after transplant, and started playing again. I play for the 8:00 Sunday church service. We joke that I have a real strong vibrato going during that time!
Rosemary

@rosemarya I am so glad my hands are more controllable now. After the transplant I received many flowers and gifts but had to do thank you notes on the computer (I made a template for my note cards) because my handwriting was so illegible. This had been happening gradually for a number of years. I worked part-time at a local Ethan Allen in customer service and the manager used to ask where I learned to write it was so illegible.

Violin! Such a cool instrument to play. My daughter played piano but after college she bought herself a violin and used to play. I suspect the violin is gathering dust now, she has a really busy life. I wish I could still play the piano well enough to play at church of something. My mother played so well she could have been a concert pianist.
One of the women in water classes plays and instructs Harp! Another cool instrument. She does a little performing too.
JK

Prograff does cause tremors, I have them sometimes they are worse than others but I've sorta gotten used to them.

@ca426 I didn't realize that prograf can cause them. I am so glad that my shaky hands stopped with the transplant. Now the only time my hands shake is when I am really hungry. My shakiness was attributed to "essential tremor" prior to my cirrhosis diagnosis.
JK

@ca426, Hi, Charlie. I want to welcome you to the Connect. Thank you for sharing your tremor experience with being on prograf. I find that my tremors also vary in intensity. Sometimes they are barely noticeable; other times a bothersome annoyance.

Charlie, are you a transplant recipient? I am a liver/kidney (2009) recipient. What transplant did you receive?
I look forward to hearing more about your experience.
Rosemary

@contentandwell, Other that when you are hungry, do you have any tremors now? What did they say was causing the essential tremors?
I never had tremors prior to transplant. I used to get shaky if I skipped a meal, though. Since transplant - and prograf/tacrolomus - I do get the tremors sometimes during the 2 hour time span after my morning dose at 8AM. I take my night dose at 8PM and I have not noticed them then.

I know it sounds crazy! But I also know that you transplant people understand:-)
Rosemary

I have had four kidney transplants, most recently 2/1/2015 , the tremors do very, not sure why..I'm sure that my transplant experience is much different than most, my first transplant shouldn't be counted, it only lasted two months and I was in the hospital for eight months and almost died...the other ones FSGS and chronic rejection but this one was the closest thing to a perfect match and doing great.