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My Story So Far - 53yo / PSA 130

Prostate Cancer | Last Active: Apr 22 7:53pm | Replies (28)

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@jeffmarc Thank you so much for this useful information. Because my cancer is already known to be aggressive, my urologist said the genetic test isn't useful. Obviously, with surgery, they will analyze the cancer after the fact - another up vote for the surgical option. All of this is really helpful.

I remain inclined towards surgery - not least because my surgeon is one of the best in the country and essentially said "I can take care of this" with an informed confidence that was reassuring. I fully expect recurrence and that it will be a chronic issue for the rest of my (hopefully very long) life.

Glad to know you're doing so well. Thank you again for sharing.

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Replies to "@jeffmarc Thank you so much for this useful information. Because my cancer is already known to..."

@mark10517ny
If you have BRCA or a couple of other genetic issues then there is a PARP inhibitor that is only used for people that have those issues. They can give you more time. This is something you really want to know.

Inherited genetic test are covered by insurance. You need to be proactive and tell your doctor you want the test not can you get the test.

Your doctor is wrong about this. Other centers of excellence like UCSF Always do a genetic test. Some drugs don’t work as well as others if you have certain genetic problems.