Boys, sometimes this gets me down

Posted by ej4902 @ej4902, Feb 24 4:38pm

So many of you guys are really smart and understand this cancer well. It’s a pleasure to see all the help this support group can provide.
I’m in the mental game now and it’s ok but it’s not what I would call good. Most days are ok but sometimes it really sucks to know I’m 57 and never going to have sex again. Gleason 9, Rp, radiation and now on the shot/pills treatment for god knows how long. I have been gutted like a pumpkin and no nerves to spare. The thought of a shot to get hard is absolutely mortifying and out of the picture, for now, anyway.
Got a fantastic wife who has been by my side without question. I know how lucky I am to have her and I feel terrible she has to go through this with me.
Yes I am glad to be alive. Nature killed me in 2024 and to still be here is an amazing gift I do not take for granted.
Anyway, just wanted to vent to guys who get it. Actually I hope you don’t get it but you know what I mean.
Guess I am hoping to hear how some of you are getting through the mental game. Pity party over 🙂

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Profile picture for scottbeammeup @scottbeammeup

As a gay man in some ways I've been "lucky," if anything about this disease is "lucky," in that my definition of "sex" was always more than intercourse.

I found a community of guys who call themselves "sides." These are guys, most of whom never had prostate or any other cancer, who just don't like gay intercourse so they do other stuff so I've been seeing someone for awhile now who was previously just a friend but has always been a "side."

I'm fortunate because, with Viagra, I get decent erections (7 on the "hardness scale" according to my sexual health doctor).

The tougher thing for me has been no semen since that's the "sign" I enjoyed myself but my partner knows this and doesn't care. If things don't work out and I have to go back on the dating market it could be tougher but I'll cross that bridge if and when it happens. I've gotten a lot better about not "catastrophizing" about what might happen in the future.

For straight guys, I assume there are probably women out there who would be fine without intercourse but don't know for sure.

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@scottbeammeup

As a woman I just want to answer to that question - "if there are women out there that could be fine without intercourse" ? THERE ARE !

I have couple of friends that just do not give a damn about intercourse part of sex, and some that just do not wish any type of sex lol and "had enough of it" XP (their words). I know one that has chronic UTIs and just wish her partner could stop asking for sex completely. I know of a young woman who recently broke up with a BF since he was asking for sex "too often" and she just has better things to do ; ). I have an extended family member who declared that she is looking for romantic partner and really nice, giving and fun man and would not mind if she had no sex ever again. Don't take me wrong, there are MORE women who prefer having sex , but since the question was "if there are any " - answer is "there are".

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Profile picture for surftohealth88 @surftohealth88

@scottbeammeup

As a woman I just want to answer to that question - "if there are women out there that could be fine without intercourse" ? THERE ARE !

I have couple of friends that just do not give a damn about intercourse part of sex, and some that just do not wish any type of sex lol and "had enough of it" XP (their words). I know one that has chronic UTIs and just wish her partner could stop asking for sex completely. I know of a young woman who recently broke up with a BF since he was asking for sex "too often" and she just has better things to do ; ). I have an extended family member who declared that she is looking for romantic partner and really nice, giving and fun man and would not mind if she had no sex ever again. Don't take me wrong, there are MORE women who prefer having sex , but since the question was "if there are any " - answer is "there are".

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@surftohealth88 From my support group, I get the sense most men don't necessarily want to give up sex entirely, but have to find ways other than intercourse to satisfy their female partners (and themselves).

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Profile picture for rooroo @rooroo

@jeffy1
Yes. First noticed above undetectable and urologist suggested not to worry. Then went to monthly and psa continued to rise, not abruptly, but rise it did. Since i had a radical prostatectomy my psa should have remained undetectable. He asked if I wished hormonal therapy and didn’t really explain what that entailed so I ditched the urologist and saw an oncologist who ordered the pet scan. Sure enough it had reappeared in bone and some organs. He explained what the options were and let me know that adt was the standard and it gave much hope for remission. Never will be cured but can live with the side effects and hope I don’t get resistant to the treatment. So far 16 months. I see my oncologist monthly for blood draw to make sure no damage from the treatment. Daily dose Zytiga 1000mg -prednisone 5 mg and quarterly shot ( not recalling the name). So far so good. But every morning when I swallow those 4 huge tablets I’m reminded that I’m living on borrowed time. Trying my best to ignore that, but sometimes it gets the best of me. Good luck to you

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@rooroo It was a good move to dump that urologist. It sounds like he was the sort who would see a problem, then recommend whatever treatment he knew of while seeing you as an object on an assembly line requiring no particular information input. I'm fortunate that my urologist and oncologist are in the same outfit, and talk to each other. Also, on the recommendation of my physician sister-in-law, I made sure that the oncologist was affiliated with a teaching hospital (Johns Hopkins), to ensure that they're up-to-date on treatment modes.

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For me, there two things: there is how I feel about the workings of my body and the physical connection with my wife. In 2019, at 58 years old, I had RP surgery that I think went well. I never had any issues with continence, but erections pretty much went by the wayside. My wife, who is truly my other half and I love her dearly, has no libido. So, her only concern was keeping me healthy. For me, though, it has been the personal desire to be able to have a decent erection; to feel that part of me. I just started Trimix and have seen my body responding in a way that I thought was gone. After 7 years! I understand mourning the loss of that part of me that made me feel whole. I was trying to compare it to other losses the other day. Is it like losing a limb? Or paralysis? It seems so trivial in some respects, but it's not. It can be really hard to reconcile the physical loss.

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Profile picture for guyrm @guyrm

For me, there two things: there is how I feel about the workings of my body and the physical connection with my wife. In 2019, at 58 years old, I had RP surgery that I think went well. I never had any issues with continence, but erections pretty much went by the wayside. My wife, who is truly my other half and I love her dearly, has no libido. So, her only concern was keeping me healthy. For me, though, it has been the personal desire to be able to have a decent erection; to feel that part of me. I just started Trimix and have seen my body responding in a way that I thought was gone. After 7 years! I understand mourning the loss of that part of me that made me feel whole. I was trying to compare it to other losses the other day. Is it like losing a limb? Or paralysis? It seems so trivial in some respects, but it's not. It can be really hard to reconcile the physical loss.

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@guyrm Exactly. It's not so much about sex - we just want to feel "normal"... or as normal as we'll get.

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Profile picture for peterj116 @peterj116

@guyrm Exactly. It's not so much about sex - we just want to feel "normal"... or as normal as we'll get.

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@peterj116 Yes! Intact. Whole.

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Profile picture for guyrm @guyrm

@peterj116 Yes! Intact. Whole.

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@guyrm That ship has sailed for many of us. Now we have bits missing. It's getting used to the new normal or as close to the old normal as possible.
It's just tough being constantly aware that things are no longer the way they used to be.

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My husband and me really feel blessed that we always concentrate on things that we have and never dwell on things that we don't.

We really do not feel that anything is "lost" nor my husband feels that he is not "whole", I guess it is all at the end "in our heads" and how we see ourselves.

Viagra and Ciallis were approved for use in the very late 90-ies and trimix in 80-ies , I really do not think that for thousands of years 50% of men age 50 and 60% of age 60 (and so on) felt "inadequate", and "not whole" just because they had ED. There is even a king known as "Enrique The Impotent" and he was ruling just fine, even had a child with his wife (it was lovers child) that he proclaimed his - problem solved ; ).

It is all about priorities in life - for us it is being together and living - all the rest is not even a blimp on a radar.

But I understand that everybody is different, I am just writing this for men that perhaps do not feel like they are "damaged goods" but wonder if women will automatically see them as such - many will not 😉 . That was a question asked - and this is my answer, nothing more and nothing less.

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Profile picture for surftohealth88 @surftohealth88

My husband and me really feel blessed that we always concentrate on things that we have and never dwell on things that we don't.

We really do not feel that anything is "lost" nor my husband feels that he is not "whole", I guess it is all at the end "in our heads" and how we see ourselves.

Viagra and Ciallis were approved for use in the very late 90-ies and trimix in 80-ies , I really do not think that for thousands of years 50% of men age 50 and 60% of age 60 (and so on) felt "inadequate", and "not whole" just because they had ED. There is even a king known as "Enrique The Impotent" and he was ruling just fine, even had a child with his wife (it was lovers child) that he proclaimed his - problem solved ; ).

It is all about priorities in life - for us it is being together and living - all the rest is not even a blimp on a radar.

But I understand that everybody is different, I am just writing this for men that perhaps do not feel like they are "damaged goods" but wonder if women will automatically see them as such - many will not 😉 . That was a question asked - and this is my answer, nothing more and nothing less.

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@surftohealth88 Every time you turn on the TV There is an ad asking: “Do you suffer from FGYU?” Or, “Has your doctor told you that you have DRGT?” Or, “If you were even watching the cleanup at Ground Zero on TV, you may be suffering from NMKJ!”
It is freakin endless, this list of maladies we never knew we had. Just another useless solution searching for a harmless problem.
Phil

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