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Profile picture for cmspringer @cmspringer

I guess he is hanging in there. His mind is still pretty good. What I have trouble dealing with is that he was doing extremely well until 5 yrs ago. He is retired minister and was conducting meetings going to therapy, driving. Doing everything he used to. Then a doctor prescribed Lyrica for his back pain. Within 3 weeks he was taken to the ER with delirium and a temperature of 87. His neurologist called to see why he had missed an appointment. I explained the situation and her comment was, “you never give a Parkinson’s patient Lyrica, because it can do such strange things”. So I blame the medical professionals. In those 5 yrs, Hugh has had a feeding tube, rehab assisted living, a collapse, another feeding tube, rehab and now nursing home. He is 85 and his body cannt take much more.

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Replies to "I guess he is hanging in there. His mind is still pretty good. What I have..."

Hello @cmspringer,

I would like to join @lisalucier in welcoming you to the PD support group on Mayo Clinic Connect. I can only imagine how difficult it is for you to determine whether your husband's care is what it should be. Is it possible to get him to a movement disorder specialist to review his condition? If he cannot be moved easily, is it possible to have a movement disorder specialist visit him at the care center?

It is probably important to have an independent evaluation to ensure that he is getting the care he needs. Will you post again with updates?