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Do any group members have Intractable Pain IP and/or anyone have a Medtronic pain pump
Chronic Pain | Last Active: Sep 29, 2022 | Replies (30)Comment receiving replies
Hello @pinkpain51,
Welcome to Connect; I'm so sorry that you are experiencing such pain, but so glad that you've joined this group. And thank you for sharing your history, responding to posts in other discussions, and thinking of others, even though you are in pain.
I'm tagging Connect Mentors, @dawn_giacabazi, @sandytoes14, @johnbishop who are familiar with chronic pain, and I'm certain they will join in with some suggestions to help you.
@mikee @gailb @jenapower @virtuous69 @tompet @contentandwell @briansr @mojoearle @sharonmay7 @medic7054 @salena54 @19lin @jimhd would you be able to share your experiences and insights as well?
@pinkpain51, I would sincerely encourage you to view this information about Mayo Clinic's Pain Rehabilitation Center (PRC), which has been in operation since 1974, and has helped thousands of people with chronic pain.
I hope @medic7054, who has experienced the benefits of the PRC will return with more information.
@peggyj4411 @philio66 @pamperthyself have discussed the Medtronic pain pump, and I wonder what their thoughts are about the device?
@pinkpain51, I applaud you for finding your will to live life fully despite your struggles; we have to advocate for our health, and sometimes have to rely on prescription opioids to provide relief. I realize your worry, especially with the current opioid epidemic; what is your doctor's opinion?
Replies to "Hello @pinkpain51, Welcome to Connect; I'm so sorry that you are experiencing such pain, but so..."
@contentandwell
JK,
I suppose you used the word "guilt" somewhat figuratively, but when I read it, I was reminded of what a therapist told me: Jim, you're carrying around way too much guilt, and most of it is undeserved.
Being made aware of that, I've worked on knowing the difference between deserved and undeserved.
Jim
@jimhd, no, not figuratively, but I like the way you have expressed it, it is definitely undeserved. I really do try to be a good person. It's funny, once a couple of years ago I said to my daughter (33 at the time), kidding, that I thought my doctor thought I was a nicer person than I am. Her eyes got like saucers and she said to me you are a good person, how could you think that? From her that made me feel good.
I did not cause the tragedy that took someone's life. I did of course benefit from it and sometimes I just feel so bad that there is a family out there grieving when I am celebrating, all due to the same cause.
Thank you for your words of wisdom, I will keep them in mind.
JK
@contentandwell
JK, I'm certain that the donor's family's grief was - the only word that comes to mind is - assuaged, knowing that they were able to give a gift to you that was a blessing and a lifesaver.
Jim
@jimhd, I have heard that, and also that it helps knowing that a part of their loved one lives on. I told my son and daughter that, both of whom are so grateful that I am alive, and asked that as a mother's day gift to me they sign up as organ donors, realizing how much it meant to them, that they could "pay it forward". My son has responded and is about to do that. My daughter has not commented, but then that is typical of her. She could have already done it and not mentioned it.
JK
I had a Medtronic pain pump put in eight months ago and at first I thought it was so great but the past few months I've been having more pain and I have no extra meds to take as needed. When I was taking oxy orally I could take a couple at once and get over the severe pain. Then I would just skip my next dose.Now I feel there's nothing I can do.
Hi moved up to New York and now I'm having trouble finding somewhere to refill my meds. It's terrible.
Connect
@pinkpain51 Kristine I wish you improved health and happiness too. As I said before, the thought of unrelenting pain is horrible so I can totally empathize with you. When my daughter gets her migraines now she often calls me because just talking sometimes helps and she knows that since I have been there too that I totally do understand. I just feel guilty that she inherited those genes from me.
JK