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HCM-ers: Introduce yourself or just say hi
Hypertrophic Cardiomyopathy (HCM) | Last Active: 15 hours ago | Replies (1163)Comment receiving replies
Hi my name is Dawn and I'm 57. I was diagnosed with OHCM. My cardiologist gave me informational pamphlets on 2 meds, one being Camzyos and the other Myqorzo. Has anyone taken the newer med Myqorzo? These meds are scary to me. Then he also mentioned surgery, which is also scary. Any input would greatly be appreciated.
Replies to "Hi my name is Dawn and I'm 57. I was diagnosed with OHCM. My cardiologist gave..."
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@dmtaylor, welcome to Mayo Clinic Connect.
I'm glad you found this online community. There are people just like you with your same concerns, wonders and questions.
The newer HOCM drug doesn't have many posts, but there is this thread:
https://connect.mayoclinic.org/discussion/myqorzo-has-anyone-tried-this-new-alternative-to-camzyos/
Open heart surgery is a frightening thought! I was terrified when I found out I needed it. I tried all sorts of ways to work around fixing my problem.
Wasn't a candidate for Camzyos, alcohol ablation, or minimally invasive surgery.
Dang it.
But I can share that once I embraced the idea, prayed about it, and accepted this was the right path, I never regretted it once. Yes, there were days that were painful, but any surgery has pain associated with it. But it was a one-and-done deal, and I do not have to take life-time medications. I got my life back!
It is a lot to process @dmtaylor, and your best actions are to learn as much as you can about what you have and what the treatment options are. Here is another link to HCM from the Mayo Clinic:
https://www.mayoclinic.org/diseases-conditions/hypertrophic-cardiomyopathy/symptoms-causes/syc-20350198
Is your cardiologist educated in treating HOCM?
When do you see your doctor again?