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Prednisone Taper Stories

Polymyalgia Rheumatica (PMR) | Last Active: Mar 5 11:55pm | Replies (101)

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@david682e
I was at abt 8.5 prednisone when I started Kevzara.
Took 3 1/2 months to taper off prednisone….a very conservative approach.
Kevzara takes up to 3 months to kick in, so I can’t tell you when it actually did.
After that I would use Tylenol for Arthritis as a supplement when ever I did serious activity, e-bike, play and walk the golf course, hike etc.
Working thru returning to a full life, pain free.
At 9 months I hit my 2 yr mark of “most likely” time my PMR started, and it was like the “lights went up” and felt just GREATTTTT.
Note: at 6 months my blood work was “off” so I was switched to shots every 3 wks, with retest of blood work. (Side effects of Kevzara)
Bingo, numbers good and stayed at 3 wk intervals.
I’m a 79yo female with no other medical issues.
Lastly….hoping today’s Dr appt stops the Kevzara 🤞.
PMR is the pits. Hope my story helps you with your journey.

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Replies to "@david682e I was at abt 8.5 prednisone when I started Kevzara. Took 3 1/2 months to..."

@tweetypie13
This all took place over a conversation, of praise, thank yous etc.
Update…..today saw Rehumy…..🎂 to me…. 🥂
Stated/plead my case….to 🛑 Kevzara
Good blood work for months
Pain free for ages
2 yr anniversary of onset PMR was like GREAT
11 months on Kevzara
Last 4months at 3 wk interval and no pain (why not give it a try?)
What more of a taper is there really to do?
Healthy active and 79yo female way ahead of the average patient at my age.
No other medical issues.

Dr……Ok…..🛑 Kevzara, re test blood 2 months (5/4)
Assuming no issues
Re test blood 2 months ( 7/5 )
Follow up appt 7/15
Lesson I continue to learn is…
YOU ARE YOUR OWN ADVOCATE.
I did my homework, was prepared….
Thx to you all for your support and I’m going to continue my support to you.
J