← Return to Ongoing jaw pain in established GCA/PMR patient

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Profile picture for sharond7 @sharond7

@jeff97 -- Thanks for taking the time to reply with this reassuring report of your experience. With the exception of this jaw pain, which I feel when eating (sometimes) and brushing my teeth (always), I've been feeling quite well on the diminishing dose of prednisone and actemra infusions. Because the jaw pain was the main GCA symptom, it does trigger some concern; but I have to say that I've been having this pain for many months, even when I was on the high doses of prednisone. I was also diagnosed with Lyme disease last fall (result of a blood test done by my rheumatologist when I was first worked up for the GCA/PMR) and given antibiotics. Though I hadn't hadn't noticed any symptoms related to that, I did read that Lyme can cause jaw pain. It was all part of a very confusing picture at the time.
My rational brain agrees with you that this is likely TMJ related pain, and it does help to have your perspective to fortify me when anxieties arise.

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Replies to "@jeff97 -- Thanks for taking the time to reply with this reassuring report of your experience...."

@sharond7 Are you seeing an ophthalmologist regularly? I saw one every 3 months during the time I was taking prednisone. It was very reassuring to me to know that the blood vessels in my eyes were staying healthy and had recovered from the GCA. In addition to monitoring the GCA, the ophthalmologist can make sure prednisone isn't causing problems like glaucoma and cataracts,.