I am 73 and am positive for Waldenstrom’s Macroglobulinemia, MYD88 positive, CXCR4 negative.
In addition, I have polycythemia Vera, JAK2 V617F positive. For PV, I take Hydroxyurea 500mg twice weekly and have therapeutic phlebotomy twice monthly, 500 ml each appointment.
For WM, we are going to start BR Bendamustine-Rituximab treatment for 6 cycles. I have had both conditions for about 7 years. The bone marrow biopsy was important in my exact diagnosis.