Orgovyx and non-sexual relationships

Posted by guybe @guybe, Feb 28 8:22am

I started on Orgovyx this week (5 days now), and already have begun to feel some of the expected side effects related to erections and orgasms. Much has been written about those, with everyone's experience being different. From my experience already (and my "baseline" status) I think I can expect a profound, perhaps complete, reduction in libido. To make the best of it, I am trying to explore in a positive way what castration will mean to my identity and my social (and formerly sexual) relationships - specifically, whether there is an advantage due to "eunuch calm" in relationships, especially with women, but also in traditional male-to-male social relations. I am trying to set myself up for happiness over the next two years or so of my journey. Much appreciation in advance for the benefit of your experience.

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Profile picture for Read & learn & live! @readandlearn

While on ADT, I had no desire. While on ADT, I met an attractive female who was very friendly & thought nothing of it. After my doctor took me off of ADT, I saw the woman again & noticed that she was attractive. Unfortunately, her interest had now waned.

C'est la vie.

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@readandlearn
haha happens alot to best of us ( I assume) ...ironic that while on ADT, I get alot of inviting smiles..etc but seldom follow up..I do follow up on good restaurant reviews and food tho..!

but I suspect if I ever get off ADT and show up at some friendly gals house hunching like a pumping pup, I will prob be reported.
" he was just here officer, an old man dirty and with a lecherous smile and intent..he fled when I pulled out my 911 ..thank god you are here...yes He had a grey hair comb over ..oh looked like he had something poking thru his Depends!"

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Profile picture for thmssllvn @thmssllvn

What I've read says the ADT drugs drop the testosterone and libido. However the ability to have an erection and orgasm is not affected. Of course this is in the context of other interventions too.

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@thmssllvn
I’ve heard from a lot of people who have had ADT and could no longer get an erection While on it.

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Profile picture for xahnegrey40 @xahnegrey40

@readandlearn
haha happens alot to best of us ( I assume) ...ironic that while on ADT, I get alot of inviting smiles..etc but seldom follow up..I do follow up on good restaurant reviews and food tho..!

but I suspect if I ever get off ADT and show up at some friendly gals house hunching like a pumping pup, I will prob be reported.
" he was just here officer, an old man dirty and with a lecherous smile and intent..he fled when I pulled out my 911 ..thank god you are here...yes He had a grey hair comb over ..oh looked like he had something poking thru his Depends!"

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@xahnegrey40

Hahahahahahahaaaaaa, that's too damn funny brother! LOL!!!!!

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Profile picture for dpayton @dpayton

@xahnegrey40

Hahahahahahahaaaaaa, that's too damn funny brother! LOL!!!!!

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@dpayton thanks..I am gonna be here for a good while I think..I warm up the audience..or try to..be sure and tip ,,I will put my tip jar out again soon..mgmt made me remove it..said I am on real thin ice with some of my stories.

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Profile picture for jeff Marchi @jeffmarc

@thmssllvn
I’ve heard from a lot of people who have had ADT and could no longer get an erection While on it.

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@jeffmarc Yes - I completely agree.

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My wife's too busy giving me twice-daily Sucralfate enemas for radiation proctitis to be very concerned about sex. 🙂 Seriously, I haven't been able to function sexually nor have any consistent desire since starting Orgovyx in December, 2024. Based on occasional partial erections, I have reasonable hope that desire and function will return some months after treatment ends, hopefully this summer. I take 5 mg Cialis and use a vacuum pump to stretch the tissue after daily showers.

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Profile picture for brianjarvis @brianjarvis

Though my libido went to zero while on hormone therapy, everything still worked. From what I was told by my medical oncologist, the key is to continue doing it, despite the “want to” not being there.

So, my reduction in libido didn’t affect my performance.

Though I have no data to support this (only my MO’s advice that it would work - and it did), my experience not having ED while on ADT might be related to me ramping up my resistance-training exercise and cardio programs to minimize the side-effects of hormone therapy; that might(?) also have the side-benefit of keeping the blood flowing “down there” as well; I don’t know. Libido eventually returned to normal when testosterone returned to normal.

As it turned out, it wasn’t worth worrying about.

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@brianjarvis That's good to know, and thanks. I do run about 30 miles per week (I coach running), and hit the gym twice a week for an hour or so. And yet, even after just the first week on Orgovyx, I've noticed a distinct reduction in my response to the usual stimuli, and my erections and orgasms (when I can achieve them) are on the soft and weak side. (But as a data nerd, perhaps I am overzealous in capturing data points!) So, as I said in my original post, I guess everyone's experience is different. And I continue to explore any positive life changes (increased empathy and calm) that come with all this, as it will be my life for two years. Stay strong, everyone!

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There's a whole world of non-intercourse intimate contact / massage / etc. that can be very pleasurable for you and your partner. It takes some exploration and communication. Also, don't expect it to be the same but look for ways that are pleasant for you and your romantic partner. And yes, ADT did open my eyes to being more empathetic, sensitive (crying after watching a tear-jerking movie etc.), reactions to misogyny (I change the channel when I hear certain songs being played that didn't bother me in the same way before ADT) and physical changes to my chest!

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Profile picture for ededed @ededed

There's a whole world of non-intercourse intimate contact / massage / etc. that can be very pleasurable for you and your partner. It takes some exploration and communication. Also, don't expect it to be the same but look for ways that are pleasant for you and your romantic partner. And yes, ADT did open my eyes to being more empathetic, sensitive (crying after watching a tear-jerking movie etc.), reactions to misogyny (I change the channel when I hear certain songs being played that didn't bother me in the same way before ADT) and physical changes to my chest!

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@ededed What a wonderful answer, thanks! You've reaffirmed the "other side of the coin" that I am trying to cultivate as I start along this road. I admire your perspective.

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Profile picture for guybe @guybe

@ededed What a wonderful answer, thanks! You've reaffirmed the "other side of the coin" that I am trying to cultivate as I start along this road. I admire your perspective.

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@guybe Too few of us PC patients are willing to set aside our feelings of "poor me", "I can't" or "why me" and try to work though to a the best possible outcome when it relates to our partners and sex.

Lately I've been having weekly lunches with a long time friend who has stage 4 lung cancer. We both talk about doing the best with our lives in spite the cancers we have.

Perhaps between us and others we could write a "self-help" PC sex guide. Maybe we could call it "How to Make Love with a limp dick and prostate cancer without pills, needles, or surgery"

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