Should I have the Spinal Cord Stimulator? Looking for reviews on this

Posted by denman55 @denman55, Jun 5, 2023

I have had chronic lower back pain due to lumbar spinal stenosis for over 10-years. I have had multiple therapies and procedures done - including RFA, Epidural steroid injections, a MILD procedure, acupuncture, OT/PT and Chiropractics, as well as an Interspinous spacer and nothing has helped my pain. After all of that, the physician I saw in March's only recommendation was for me to have the Spinal cord stimulator, but I am actually afraid of this and have read that there have been numerous injuries as a result of this implant, and after reviewing the booklet and watching the video I initially felt that it was just to restrictive in terms of how you could move your body. If you have had this procedure please let me know your results. Many thanks.

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Profile picture for mrsr1234 @mrsr1234

Hi, multiple of my doc's have recommended spine stimulators for different reasons. The effective rate of the study I read for the last one (Abbott - pain) was like 80%; not nearly good enough for me to have something implanted in my body that may not work and may cause other issues.

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@mrsr1234 I understand where you are coming from. Remember, there are no guarantees for any medical procedure. Consider doing the trial, which does not require any hardware to be permanently implanted. It will give you an idea whether the device will help you. Check out the Boston Scientific Waveriter. It is the top rated SCS. I wish you well in your pain journey.

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I had good success with the Medtronic SCS. It reduced my pain by about 60-70%. Unfortunately, the implanted paddle lead shorted out and it stopped working after about three years. I wish you well.

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Profile picture for Katherine  Zablatnik Webster @katherinew66

I had the Medtronic spinal stimulator put in about six weeks ago. It is the size of a half dollar and the thickness is 4 centimeters , the battery was turned on two weeks ago and having 70% of my pain removed is worth it, I can walk without pain.

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@katherinew66 I had one put in by Boston Logistics. They tried 7 programs within a 3 month period and nothing helped me. My doctor removed it. Still on Norco. You are very lucky to have 70% of pain gone. I would have settled with 50%! I have talked to others who have it with success. I really had my hopes up.

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The Medtronic spine stimulator is called inceptive .they just came out with it in 2024. It was a lot of trouble putting it in and I had fear that it wasn’t going to work. I had a friend who got one in 2025 and it really worked for her. She coached me through the operation. Inceptive uses AI. To program your pain, relief.
I’m sorry that your stimulator was not successful. They keep coming up with new ideas.

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I read where failure rates were between 30-50%.
My trial with Boston Scientific in October went well so I said “bring it on. “
I had my Boston Scientific SCS implanted last December and it caused me more pain than I’d had before so I had it removed a week ago. I’m having much less pain now. I’m going to focus on PT, strength training, walking, and maybe a pain psychologist. I just want to get fit again and see where everything falls after that. I’m 73. Good luck to all. My experience doesn’t mirror everyone’s but removal was the right decision for me.

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Profile picture for denman55 @denman55

You're not getting the SCS because you have pain medication. I do not have pain medication and it is not available or prescribed in my area, or my state, so the SCS is my only option to get some sort of pain relief from this pain that I have suffered for well over 10-years. I initially refused to have the SCS - three times, when offered by Pain Management Physicians. I'm an RN, I've done all the research, the reading, watched the video and read the booklet. And I made the decision that No, I was not getting this SCS. But ...after spending months having PT, acupuncture, Chiropractics, having Epidural Steroid Injections, an Interspinous spacer, and a MILD procedure only to find that nothing worked for me in reducing my pain......I have no other option available to me to at least do the trial of the SCS. It does actually scare the heck out of me, because I've read all the horror stories out there.......but maybe I need to look for some success stories too.

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@denman55 I'm in the same boat as you after fighting with ilio inguinal pain for 4 years it's so debilitating the only option I have now is a spinal cord stimulator which I'm scheduled for in a couple of weeks I just have to have faith in my doctor and not get too anxious over some of the horror stories. Different people have different outcomes I just hope one of the lucky ones that gets at least 50%, 30%

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Profile picture for pen55 @pen55

@denman55 I'm in the same boat as you after fighting with ilio inguinal pain for 4 years it's so debilitating the only option I have now is a spinal cord stimulator which I'm scheduled for in a couple of weeks I just have to have faith in my doctor and not get too anxious over some of the horror stories. Different people have different outcomes I just hope one of the lucky ones that gets at least 50%, 30%

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@pen55
Have you discussed a pain pump with your doctor? It will pump opiates into your spine and this does not affect your brain, only your spine. I have had a pump since 2015. I hear horror stories about spinal cord stimulators not working and having to be removed (yet another surgery). The pump requires maintenance as it must be refilled with medication about every three to four months. This requires an injection, but Lidocaine can be injected first to reduce discomfort. I have severe scoliosis and spinal stenosis. without my pump I would be in a wheelchair. The pump I have is from Medtronics. It might be worth looking into.

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Profile picture for calofmichigan @calofmichigan

I read where failure rates were between 30-50%.
My trial with Boston Scientific in October went well so I said “bring it on. “
I had my Boston Scientific SCS implanted last December and it caused me more pain than I’d had before so I had it removed a week ago. I’m having much less pain now. I’m going to focus on PT, strength training, walking, and maybe a pain psychologist. I just want to get fit again and see where everything falls after that. I’m 73. Good luck to all. My experience doesn’t mirror everyone’s but removal was the right decision for me.

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@calofmichigan

A friend who has the Bos Sci unit and swears by it had this to say.

"" My spin regarding the individuals who experience poor result via ScS is most likely that they - the patient - failed to fully "follow the recovery time-line", thus, dislocated the electrodes. Staying mostly immobile for 6 weeks "ain't easy" - especially for an active individual. NO twisting/turning/bending/lifting . . . THAT was hard duty!""

If you dislodge the electrode it aint gonna help. I doubt that I can be that disciplined for 6 weeks tho I'm not sure/convinced that SCS is right for me.

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