← Return to Cerebral Small Vessel Disease - How are you coping?

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Profile picture for bdesteiguer @bdesteiguer

@lisalucier
Dear Lisa, I was recently diagnosed with small vessel disease and am looking for support. I have lots of appointments with doctors, but all they say is there's nothing I can do but exercise to keep the blood flowing in my brain, sleeping well and eating well. I am definitely doing that, but am still exhausted and mentally confused and with a sore scalp and some headaches. Is there really nothing else to try? I live in the Seattle area if anyone knows of someone knowledgeable about csvd in this area who might be accepting patients? I'd be interested in being in a research study or something, but it seems to be almost impossible to even get an appointment at the University of Washington. Thank you for your caring and time, Bonnie

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Replies to "@lisalucier Dear Lisa, I was recently diagnosed with small vessel disease and am looking for support...."

Hi @bdesteiguer - welcome to Mayo Clinic Connect. You have come to a good place for support. Feeling exhausted and mentally confused with a sore scalp and headaches would be a challenging way to live.

I'm tagging @4leigh @tcainaru @foundryrat743 @karen252 to see if they will share their experiences with you with CVSD and what they were told to do by their doctors. They also may know of a doctor you might see in your area in Seattle.

Bonnie - will you share more about the exhaustion you experience and how it affects your day-to-day life?