← Return to Lewy Body Dementia Caregiver Support: What would you like to share?

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@rwinney
Great points and questions.
From my children who live several hours and several states away, I can only expect them to be there for me emotionally. Check in calls are great, better if they're video calls. That's just me. Other folks in different situations may say differently.
I rely on support from my husband's sister and a few others in our families who actually check in (one angel sister-in-law and one of my sisters who agree to be with my husband for short periods of time if I can't be with him).
All the best to you. Sounds like you are doing a lot to support them. 🫂

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Replies to "@rwinney Great points and questions. From my children who live several hours and several states away,..."

@judimahoney Thanks. I am, but somedays it doesnt feel like enough. It's time for home health aids as mom isn't (can't) changing clothes, cleaning body/teeth, house. She sleeps in full clothes and jeans. Her companion just says that she wont do anything for him when he tries to help her.

These past fews weeks kicked into another phase after increased meds for hallucinations/delusions of infidelity, families and children in her home. She wont sit long, continually pacing and moving things around the house. Fell again. Her bright spots may make sense with memory but primarily she makes zero sense and nothing is believable anymore. She needs care for companionship, nutrition and scheduled structure also.

The gravitation of mourning the loss of each part of her can be so gutting, but I'm trying to remain present and value each phase of who she becomes and cherish her while I have her.