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DiscussionLewy Body Dementia Caregiver Support: What would you like to share?
Caregivers: Dementia | Last Active: Mar 28 12:41pm | Replies (11)Comment receiving replies
Replies to "@rwinney Great points and questions. From my children who live several hours and several states away,..."
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@judimahoney Thanks. I am, but somedays it doesnt feel like enough. It's time for home health aids as mom isn't (can't) changing clothes, cleaning body/teeth, house. She sleeps in full clothes and jeans. Her companion just says that she wont do anything for him when he tries to help her.
These past fews weeks kicked into another phase after increased meds for hallucinations/delusions of infidelity, families and children in her home. She wont sit long, continually pacing and moving things around the house. Fell again. Her bright spots may make sense with memory but primarily she makes zero sense and nothing is believable anymore. She needs care for companionship, nutrition and scheduled structure also.
The gravitation of mourning the loss of each part of her can be so gutting, but I'm trying to remain present and value each phase of who she becomes and cherish her while I have her.