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DiscussionAnyone have chronic lymphocytic leukemia (CLL)?
Blood Cancers & Disorders | Last Active: Jun 22 7:21am | Replies (368)Comment receiving replies
Replies to "@bettycll Thank you for your update. I am newly diagnosed with CLL and in the wait..."
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@txgirl88
Hi! When I was newly diagnosed, it was pretty much all I could think about! Now after some months of watch and wait and being stable, I don't think of it all the time. I hope the same will be true for you! When I was first diagnosed with CLL, I had been experiencing 8 months of sinus infections - with months of antibiotics; I had sinus surgery scheduled. When my Primary wanted me to see a hematologist because of my elevated white blood cells - I, of course, thought the elevated white blood cells were from all of the sinus infections. The hematologist/oncologist disagreed and thought the infections were due to the CLL. Blood testing determined that my immune system numbers were below normal. So, she started me on the gamma globulin infusions. So, I do not know if the infusions are considered standard treatment, or not. However, I have learned that they are very common for patients with CLL because many CLL patients do have compromised immune systems. On your next visit, you might want to ask your oncologist about testing for your immune system.