Peripheral neuropathy FREEZING

Posted by majax @majax, May 17, 2025

I fell and was told I had central cord syndrome. Later Diagnosed peripheral neuropathy, main symptom freezing cold both sides especially below knees. Both feet feel like encased in a block of ice. Anyone heard of this?

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My main issue is my legs from the knees down are always freezing cold. My husband says my feet feel warm to him! I feel like they are blocks of ice and painful. My balance is a nightmare. I use a rollator. All the time. Even around the house.

I was diagnosed with PN with no known cause. Last year I was diagnosed with "Adrenal Insufficiency" and must wear a medical alert bracelet at all times.

My first fall was in 2001 and my last fall was exactly one year ago 2026. Total falls only about 5. I can feel one coming on and get down quickly. I was a fainter. Began when I was about out 10 years old. I fainted in class a few times in class and could always get out of class.

I all but bound to my recliner. I sleep in it most nights.

My husband is an Angel. He helps me so much. I feel helpless. He is my rock!

I am always cold. Especially from my knees down. I keep an electric blanket on my lap and legs all the time. Heat and Hydrocodone help with my pain.

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@majax
Another thought is Reynauds syndrome which can affect limb temperatures and you may want to see a rheumatologist. An endocrinologist can help with thyroid.

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Reynauds symptom is the first I have heard that can explain freezing calves and feet. So painful.

I will research more and check with my Endochronalist.

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I have peripheral neuropathy due to high light chain levels causing axonal dysfunction. I am taking R-B for a b-cell lymphoma.
The worst part is leg weakness below the knees and my toes are often freezing. But luckily I feel well otherwise and am still snow skiing. Electric socks, Lenz brand to be specific, have been a game changer when out in cold weather. However, the socks do come with a warning. Could be dangerous if you have complete numbness and turn the heat up too high. Easily controlled thru my smart phone.
Just a thought.

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