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Anyone living with Essential Thrombocythemia with JAK2?
Blood Cancers & Disorders | Last Active: 11 minutes ago | Replies (682)Comment receiving replies
Hi @julmo Welcome to Mayo Connect. Thank you for sharing your story with having ET and what’s been working for you to keep your platelet levels in the normal-ish range.
2.2 million was super high! It’s encouraging to see that anagrilide has been working well for you and that you’re not having any of the issues you experienced with the hydroxyurea. Wishing you continued success along your journey. I hope you’ll pop into more conversations!
What led to your diagnosis of essential thrombocythemia? Were you having symptoms previously or was this through routine bloodwork?
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@loribmt thanks so much for writing. Believe it or not, I was diagnosed from the emergency room with a cat bite. My kitten was playing with me and I got bit. The emergency room told me she saved my life. I was hospitalized for a month from side effects from hydroxyurea. I’ve had a very rough time, but I’m finally stabilized. I still have a lot of side effects, but they are manageable. It’s nice to be able to chat with people in my situation. It makes me feel less alone.