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I was diagnosed with CLL 3/4 years ago had an extremely low hemoglobin count after two years 6. Not good so after two units of blood and four infusions of Ribitoux (sp?) things changed for the good. Monthly blood tests turned into waiting for three months blood tests. I have always had very light nights sweats which my Doctor is concerned about but my sheets are not soaking wet. So I feel good no weight loss or loss of appetite or energy. So I asked my Doctor what causes CLL . She says No one in the Medical Field has figured that out at this point in time but they have ways to treat CLL. So I’m in a wait and see. No treatment etc. yet. I’m just going to live my life as best as I can and keep a positive attitude. I have posted a few times before on this site and people being treated with different drugs with side effects I feel for. I’m not there yet.
Anecdotally, a positive attitude is a good thing to have. My attitude which is positive I will just deal with my CLL.
Take Care in the best way one can,
Butch Ukura

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Replies to "I was diagnosed with CLL 3/4 years ago had an extremely low hemoglobin count after two..."

@bochos Hi. It is interesting that you have light night sweats. So do I. I have had a few really drenching episodes. Crazy. I am fairly new to the Mayo practice. They are watching a few symptoms that now make sense. I had been seen at another practice prior.
I am generally a very positive and happy person. This has blown my mind. It will take me just a little while to find my footing with CLL.