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RLS coming off DA and trazadone-sleep issues

Sleep Health | Last Active: Mar 17 11:16pm | Replies (15)

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Profile picture for kodi @kodi

Thank you for the kind words!
Working on a 2nd opinion as the Dr. is a neurologist sleep specialist however wanted me to go back on a DA after a “Holliday”. Hopefully time will heal.

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Replies to "Thank you for the kind words! Working on a 2nd opinion as the Dr. is a..."

@kodi
After the many RLS medications to curb the augmentation, the neurologist had me go on a "Drug Holiday". My jaw dropped. He didn't presribe anything for me to get over the hump, and wouldn't presribe the next drug, methadone, an opiate for weeks later. We were renting a summer house in Utah, and I recall pacing the floors at night, read, try to get some sleep, pace the floors, eat an apple or drink chicken broth. This went on for weeks. The methadone (which I was against from the beginning, but to find out later on, it is the next course for treatment) wasn't for me, and I was able to see a more understanding neurologist form Banner Medical in Arizona, who talked to me about it. I went in with a more clear head, and used it for about 3-4 months, but the panic attacks were to much, as flying in the air; or in a situation in an elevator, and you cannot get out, an MRI, I know there are other situations.
Mayo's Sleep Specialist has been wonderful, and talked to me about the use of buprenorphine, another opiate, at 1 mg. I cut the 2 mg down to 1/3's and the dosage is at .66. I should add, I have PLMD, another form of RLS, and the big reason why the other drugs never helped. I don't kick my husband at night, I receive good sleep, no more panic attacks. I would ask the neurologist about the buprenorphine. Have dental check-ups, as the subloxene you place under the tongue, can cause tooth decay. I have been on it for two years, and I have not had a tooth decay.
Good Luck!