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DiscussionNew HCM diagnosis. Worst symptom is mucus buildup. Is this normal?
Hypertrophic Cardiomyopathy (HCM) | Last Active: Mar 30 9:48am | Replies (20)Comment receiving replies
Replies to "I am a 78 year old female just diagnosed with HCM with obstruction about 6 weeks..."
@cornish Welcome to Connect! I am glad you found this thread where people have discussed phelgm and hope that you feel that you are not alone. I never experienced what you describe, it is clear that others have. How has HCM affected your life? What made you seek medical advice which resulted in your diagnosis? You have a conference call with one of the HCM cardiologists at Mayo, great! You are in excellent hands! Again, welcome, and we look forward to hearing about your HCM journey.
@cornish I'm also a 78 yr old female. Was diagnosed with OHC in Sept of last year. I have the coughing at night for a long time, but thought it was from allergies and maybe COPD. My heart specialist told me there are 4 stages, and I was in the last stage, so my OHC is bad. I started Camzyos 4 days ago, and last night I had no coughing up of the frothy phlegm. My energy level is also up. The reason I didn't start Camzyos earlier was because I had other issues, a spot in my breast, mammograms, biopsy, plus a biopsy in ear. My husband also had knee replacement in Oct, and was busy with him. I was afraid of side effects from Camzyos, but wish I had started it sooner, as it's been great for me, so far. I have read wonderful comments on Camzyos, and a few that have said it stops working for them after awhile. I pray I'm not one of those. My doctor has told me to drink plenty of water, as it helps the heart to stay fluffy. I am also on 12.5 mg of Metoprolol daily. I was really afraid of Camzyos, as it has the Black box warnings, but I knew if I didn't take it, I wouldn't be here long. I also didn't want to have the open heart surgery (can't remember the name of that), but anyway felt I really wasn't in the condition to make it through that. I am really happy with Camzyos so far. Already way more energy too. Best of luck to you.
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Hello @cornish, it looks like you made your first post here on Connect, so glad to have you!
Being recently diagnosed with HOCM can be overwhelming at first, so learning as much as you can is a good thing.
How wonderful you have conference call with the Cardiology Department at the Mayo coming up! Have you had a chance to read the many posts here about cough/phlegm and HCM? There seems to be a correlation to each other.
Is this one of the questions you plan to ask on your conference call? My advice is to be prepared before this call and have your list of questions. You want to make the most of this valuable phone call and get as much information as possible.
I am posting a link from the Mayo Clinic that details how to get the most from your visit to the Mayo Clinic. I understand this is a phone conference but there is a section about half way through the article that details how to list your questions and prioritize the time you have:
https://www.mayoclinic.org/patient-visitor-guide/how-to-make-the-most-of-your-appointment
I'm glad you are here and hopefully you will get answers to your questions soon!
Have you started your list yet?