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Anyone with Plasma Cell Leukemia or family?
Blood Cancers & Disorders | Last Active: Sep 10 11:53am | Replies (66)Comment receiving replies
I have plasma cell leukemia, it transitioned from multiple myeloma. I was near death last Oct and traditional chemo didn't work. It even permanently affected my hearing! Teclistamab injections-a different cancer fighting drug, saved my life. I would ask the doctor about it. It may only add a year to my life because this cancer is mean. But I'll take one more year. I still have Rib Bones breaking and other mildish cancer symptoms, but I am feeling good. Best to you and your family! Abby
Replies to "I have plasma cell leukemia, it transitioned from multiple myeloma. I was near death last Oct..."
@abby5 My dad has PCL as well and his doctor had mentioned potentially trying teclistamab if his counts go up too high before his CAR-T cell therapy. Have you noticed any side effects while on it? I wish the best for you and your family, I know this diagnosis can be very daunting and difficult to navigate.
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Welcome, @abby5. I'm tagging @knikriverstudios @19lesterk @krismikkalson, who also have experience with plasma cell leukemia. Given that it is a rare diagnosis, I wanted to make sure that you all connected to support one another.
Abby, thank goodness that teclistamab (Tecvayli) worked after chemo didn't. Are you still on teclistamab as a maintenance treatment? How are you doing?