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Quandry on my chosen pathway

Prostate Cancer | Last Active: Mar 3 11:32am | Replies (22)

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Thanks Brian,
Unfortunately, they didn’t do testosterone baseline before they started Orgovyx. I ordered one myself from a private lab, which I’ll have in a couple days, but no baseline compare to.
My SUV Max was 8.9 and my mipsMA expression score was 3.
Gleason was 4+4 .
There were no other risk factors in the PSMA, MRI, or biopsy
I’ve not had any Genomic and genetic testing. I asked about doing those and they said they had no interest.
I met with the interventional radiologist today and discussed doing the PAE procedure prior to radiation. He said I’m a very good candidate for that. I would get good shrinkage and probable urinary stability. He didn’t think my urinary issues were much of an issue. If the shrinkage was significant it could possibly open up the Brachy door for me but I wouldn’t count on that.
I would have to wait 3 to 4 months for the PAE to heal before they would start SBRT.

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Replies to "Thanks Brian, Unfortunately, they didn’t do testosterone baseline before they started Orgovyx. I ordered one myself..."

@dribbles
Do not ask about genetic testing. You tell your doctors you want genetic testing. Do not accept no for an answer. It is covered by insurance. You have to be proactive in your treatment. You can’t let the doctors push you around..

@dribbles The more information you have, the better you’ll be able to make a treatment decision.

With your SUVmax of 8.9, how does that compare with the SUVmax of your blood, liver, and parotid glands? (That’s how they’ll tell how aggressive it is.)

The genomic (biomarker) testing is especially important because it looks for genes, proteins, and tumor markers that tell more about the prostate cancer that might change treatment management. (I can understand about having no interest in genetic testing right now, but it may be of great value later.)

Genomic (biomarker) testing is always valuable - Decipher, Prolaris, OncotypeDx, or one of a dozen others. (Many guys today get Decipher; I had both Prolaris and OncotypeDx.)