Connect
← Return to I have a Pain pump with Morphine, I'm still in so much Pain
Discussion
I have a Pain pump with Morphine, I'm still in so much Pain
Chronic Pain | Last Active: May 22 10:45am | Replies (57)Comment receiving replies
Hey Michael- I just lost my entire written response back to you cause I got a call and it didn’t save. So I’ll(try to) be brief. First off, I only got the pump because all the docs drank the micro dosing kool aid. It’s a total sham. Of course 275 mcg. After 7 weeks dry knocked my pain out of the ballpark. And they know from my history I would acclimate to my dosage very quickly. But I found myself begging for an increase at every monthly refill. It took 18 months and a visit to a colleague to surgically check the integrity of my catheter and then he tripled my dosage and that made the world a better place to live. So much for “micro dosing”. From then on, she trusted me to inform her anytime I needed an increase, I got it. She’s the doc that switched me to fentanyl (without the ordeal you went through) because dilaudid was not yet approved for pumps. When I moved here my doctor informed me at the first refill that he is an interventional pain management specialist that doesn’t prescribe any medication at all. And he had his own practice, but shut it down to work at a big PM clinic. That’s run like a paramilitary organization. I’ve gotten two 15% increases in 2 years. I have no idea what kind of pushback I’ll get with my med change request, but I’m 99 44/100’s % certain I will get resistance. My health has significantly diminished since I moved here. I’m currently in divorce proceedings because I can’t live like this anymore. And she no longer remembers the level of pain and suffering I endure on a daily basis. I can only hope that wherever I eventually land has better doctors and healthcare in general.
My current diagnosis is:
Failed Laminectomy Syndrome
Failed back surgery syndrome in both my lumbar and thoracic spine.
RSD that’s now bundled into CRPS.
Severe left body nerve damage.
Total hip replacement.
Waiting on a date for a total knee replacement.
Anxiety and depression
And lastly, severe insomnia.
I have so much more to tell but I just can’t type anymore on this phone.
I did want to ask what brought to the world of pain management? And how long have you been here? Gotta go, my right wrist is screaming. God bless you brother. This would be so much easier if we could just talk.
Replies to "Hey Michael- I just lost my entire written response back to you cause I got a..."
Connect
@bilt4pain I dont really have anything concrete to add to your post but to tell you i suffer excruciating pain levels. My story is all over this blog in places. I had a small abdominal wall tear which was left unrepaired for 6 yrs, it didnt show on scans. I was bedridden, couldn't walk or hardly eat, got down to 78 lbs , eventually after threatening " unaliving", ( the pain was horrific, it spread thru out my digestive system, which is now permanently damaged.), I eventually got repair surgery but due damage to my colon, I never fully recovered. The pain ultimately landed in my Celiac Plexus , ( solar plexus), bundle of nerves on the aorta....pain is excruciating and started affecting my spine.
Horrendous experience with a SCS, which rendered me almost unable to move due severe nerve irritation.
I too am now diagnosed CRPS. When removing the Stimulator they found i had a haemota and a spinal canal bleed, much scar tissue, so needed 2 laminectomies to stop the bleed. 6 months post surgery the nerves in this area and in my Lumbar ( i had a large bruise in lumbar immediately post surgery.) have gotten more and more irritated, to the point if I try to bend the Pain sends me into the stars...its 10/10 and worse. Eating still causes severe pain , i feel severe nerve irritation in lower lumbar soon as I start digesting...horrible sensation.
Im sorry for your divorce, I found stress highly aggrevates my CRPS , 20 mg of oxycodone doesnt touch the pain, neither did 2 shots of Dilaudid.
All I can tell you is try to keep stress free. I have done much reading about Neuroplasticity and how our brains learn pain. Its unlearnable but not easy.
The method goes, learn to be grateful for all the small things in life,try to shift to a positive state, hard in pain I know, but after 3 months it, this new Mindset is helping me.
I no longer fear my pain and try to understand what its telling me. Our bodies WANT to heal but cannot do so under stress. Like you I'm going thru a " divorce"...not literally, but have left an abusive relationship which kept me very sick, stress is a killer for pain. Managing alone is hard, I have been bedridden 90% of the time during last 2 yrs, due severity of pain but slowly with Peace its improving. There is no magic bullet for recovery but Im finding the state of " gratitude " is slowly helping me heal...the body needs Peace, no stress. All I can do in this post is offer support but a shift in Mindset has truly helped me....my pain hasn't magically disappeared but when im able to be a little busy, i'll have 30 mins when pain doesnt dominate my World, im trying to build on that.
Good luck, sorry this is long, your post touched my heart....CRPS isnt called the suicide disease for nothing...