Thank you so much,
So TMI,
I was a longtime caregiver (had to stop due to medical issues ) as well as a patient.
I am newly 53 and am riddled with osteoarthritis. I have had double fusion spinal surgery - L4/5-S1 & C 3/4 in 2006 w/degenerative disk disease & Spinal stenosis, etc.
I have small fiber neuropathy since 2021 & now starting in large fibers as well.
Total left knee was done in 2023 and right knee was due as well but due to ins. issues will be done 2026.
Both feet have had 2nd and 3rd tarsometatarsal joint fusions done w/bone grafts - Rt- 2024 and left Nov. 2025 & still healing…
New diagnosis of PSA has gone misdiagnosed since 2006. Severe muscle, nerve and tendon spasms, everywhere. chronic weakness and fatigue.
So, short story - long, I’m being told that the misdiagnosis caused all the (Osteoarthritis) and damage and the steroid use for chronic pain and inflammation over the years caused the Adrenal insufficiency which now causes me to live on steroids forever.
I am terrified that this not only affects me but my kids as well, my 32 yr just started with his 1st PSA flare a few months ago (we are assuming). They don’t know definitively yet. But his feet and ankles swelled up and he couldn’t walk for weeks, etc. It was awful. He had just started a new job so he lost his job and his ins before getting the help he needed. Now my 12 yr old daughter has just been diagnosed with arthritis in her c-spine.
So, I am always looking into posts about issues regarding any of these conditions in the hopes that I can get some ideas on what might help best.