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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Mar 3 5:40pm | Replies (1163)

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@carlabaz Hugs to you as well. It is hard, not knowing what is coming and how it will affect us. I'd be glad to help where I can, and it would be good to get a detailed explanation from your oncologist on what all your numbers mean. I plan on keeping a journal of my treatment, reactions (tired days, good days,...). Doctors don't always cross check meds or supplements, to see if some are easier on kidneys or other organs during treatment. Here is a good site for MM info: https://themmrf.org/multiple-myeloma/ . For me, it is best to start treatment before it spreads (a risk with IgA Kappa light chain SMM, less for other varieties).

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Replies to "@carlabaz Hugs to you as well. It is hard, not knowing what is coming and how..."

@kayabbott
Thank you so much for the information. I will have her explain the numbers to me, I don't go back til April. I hope we do start treatment then, no matter what my numbers are. She suggested it at my last visit because my mental state really took a dive. I don't think it was the SMM, think it was just from the outside world. I think a journal is a great plan, I will start that too. Thank you for the link. Going there now.