@kris2468 So true of how long it would have taken to have the battery of tests that NJH does to understand much about our systems that could be related to BE.
Funny you said that. I wondered while writing to you if my input may have made a difference. I don't think so.. I think it is the doctor themselves and how they wish to approach all. That I obviously don't know for sure ...just do wonder about that,.
Interesting that you not only had a visit with a pulmonologist but also had Dr. Hass and ID doctor. Sounds like Dr. Hass was your lead doctor.
I did not have a visit that week with an ID doctor.
However Dr. Hass's schedule may have been open and you were 'plugged' in with her due to her having times opened .
Yes I was told that the follow-up visit would be a two day visit. I choose to forgo that with NJH having made an appointment with Dr. P. McShane in Tyler before she left to go to the CDC. Tyler being 5 hours away vs. 12 hours away with NJH. I prefer to drive.
I have been giving thought to going back up there again. They have the best access and timely access to matters related to respiratory conditions and BE in particular.

Did they find a MAC bacteria with your submitted sputum for testing? I do like being able to submit sputum for testing monthly. I send my sputum to Tyler.
Barbara