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@kayabbott I haven't learnt to read my numbers yet. I appreciate your blood stats and will compare to mine with notes, this will help me learn. I am having the 24 hour hour urine test in April. I've been easily agitated the last few months and she was thinking maybe she would start my treatments early. She decided on seeing how I got along for another 3 months since I was doctoring with MD too. I don't have the CRAB symptoms yet either. Those scare me. I'll let you know what my numbers are, if thats okay? Hugs
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@carlabaz hi there. I have not yet learned to read my lab results beyond the basics and I was diagnosed several years ago with MGUS. I rely on the professionals because I often look at an abnormal result and catastrosize when my oncologist explains that it’s not a big deal.
There are members on Connect who are good at it, and I have used this link, but I encourage you to call your provider to get information related to your test results. There are so many variables such as coexisting conditions, medication side effects and even diet and exercise that are specific to you. You want a provider who looks at all of that and can help you navigate your healthcare needs. Sometimes it takes a few swing and miss attempts to find just the right provider. They may not have the best “bedside manner,” but if they are thorough, take the time to know your whole healthcare needs and take the time you need to understand the complexities, you will know you have found the right match.
https://www.myelomacentral.com/livingwithmm/multiple-myeloma-treatment-monitoring/understanding-multiple-myeloma-lab-test-results
I hope this helps you a bit.
I’m interested in your journey. Will you let me know how it’s going for you?
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@carlabaz Hugs to you as well. It is hard, not knowing what is coming and how it will affect us. I'd be glad to help where I can, and it would be good to get a detailed explanation from your oncologist on what all your numbers mean. I plan on keeping a journal of my treatment, reactions (tired days, good days,...). Doctors don't always cross check meds or supplements, to see if some are easier on kidneys or other organs during treatment. Here is a good site for MM info: https://themmrf.org/multiple-myeloma/ . For me, it is best to start treatment before it spreads (a risk with IgA Kappa light chain SMM, less for other varieties).