@mcharlesfrancis, your post covers a lot of information I was seeking. I had been wondering if I had not worded what I wanted in the right terms. When Mayo doctor suggested the 1,8, 15 day treatment every 28 days in July of 2022 my local oncologist said that he found older patients did not tolerate the Gemzar + Abraxane as well so he went with the 2 on one off every cycle. After over a year we went to one on, one off which I tolerated better. I did find one article talking about being treated 6 months (6 cycles) but not much else was said. My sister-in-law (also a retired nurse) said I should not word it so much like a nurse using "protocols & care plans" terminology. I told her that pancreatic cancer patients understand more than she gave us credit for since we seek information & watch for new developments.
I especially love you "Wanting:". After 4 years & now with a new oncologist I need the answers to your wanting list. At 40 rounds last time I was becoming so toxic it took from 18 Dec to the end of January to finally have some quality of life & energy. My CA19-9 went from 69.8 (Dec) to 171.7 (Jan. 30th) to 493.3 (Feb. 12th). My oncology team went nuts with the Jan to Feb increase & I will be having a CT tomorrow (instead of in 2 more weeks). I had a "rough" January with ER visit BP (220/109), "chronic" rib fractures bothering me & various other issues, so I am not worried about CT. In fact, I told my nurse case manager that the results would probably be similar to the last 15 + CTs. Will see tomorrow 🙂
Cumulative toxicity is no joking matter! 🙂 No one is concerned that my WBCs jumped to 18.9 or my BUN Creatinine ratio is at 35. I kept saying last December that the only thing I did not do was glow in the dark, but only I found the humor in that 🙂