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Anyone diagnosed with Gastroparesis?
I have had problems similar to so many GI people. The swallowing problems (food stuck in the throat, bloating, nausea, feeling like choking, "fullness" for hours). Finally after many upper and lower scopes ( have 18 cm colon left and function 80% well when cervical neck is well), a small hiatal hernia, numerous different PPI's for stomach changes, reflux, etc. and now on Nexium, the finding out the main problem 6 years ago was gastroparesis caused by a pain medication. Instead of a pacemaker, I tried a "newly" approved drug for the pyloric muscle of the lower stomach, botox, placed in 3 places to keep the muscle open a little so food could continually be released into the small intestine. The erythromycin in a low dose is a prokinetic, making the nerves contract the stomach muscles but, wasn't working. Still use 4x/day. This way no food collected in the stomach being able to "rot" causing sepsis, and decreased daily nausea and vomiting. I still can only eat small amounts and is more liquid or soft medicine/foods. My appetite isn't the best. I often have reflux, bloating, constipation and hoarseness. But it has been 3 yrs since botox to my stomach and it is working. I take my blessing where I can. I hope this helpe others.
Also, my diet had to change to rapidly digesting foods like white bread and not the "good" eating I was doing like whole wheat or 21 grain bread ( was laying on my stomach for hours), plus many vegetables and also many raw vegetables...a no no.
My daughter is going through so much of this and is an RN. Has Barrett's esophagitis, hiatal hernia, dysplasia, leaky gut syndrome i.e. and awaiting biopsies. Constant n/v, bloating,hoarseness, food in the throat like you in the chat.She is also an RN. On many "new" meds again.
It really can get to you especially when you work and have a very busy life like she does.
My best to all. Hope I could help someone.I understand your frustrations. It is wonderful having an understanding doctor that listens!
Joan
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Let us know how that goes for you.
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1 ReactionMine came from a C-diff infection and the Microscopic colitis/Collagenous
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1 ReactionJust been diagnosed with gastroparesis and doing the diet and still a wait to see gi again havent been told much about it ...
Hello @hymelchristy, and welcome to Connect,
You may notice that I moved your discussion and combined it with this existing discussion on gastroparesis. I did this because I thought it would be beneficial for you to be introduced to the many members who have discussed much of what you may be experiencing.
If you are replying by email, I suggest clicking on VIEW & REPLY so that you can read through some of the earlier messages and meet some of our other members talking about their or their loved ones' experiences.
May I ask if you would share a few more details? What type of diet are you following? What symptoms are you experiencing? Sincerely look forward to getting to know you.
I hope to have my doctor presrcibe a neuropathy test for me. Due to a friend having neuropathy, I looked up on the Mayo site to learn more about neuropathy. It can cause digestive problems (which I have and they call it IBS and acid reflux); and sleep problems (which I have); extreme touch sensitivity (a lumped up wrinkle in my sheets can cause pain and wake me up); and rheumatoid arthritis pain - mine is osteo-arthritis). I need to get this checked out to see if I've been misdiagnosed.
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1 ReactionYes i do
@darlia I have gastroparesis caused by chronic pancreatitis and the inability of my pancreas to produce digestive enzymes. I take enzyme replacements, but they only make things a little more tolerable and add in my opiates for pain an d I usually take two different meds for constipation daily and at times that is not enough to keep things moving. Does this help any? Is there any med you take that could b e a contributing factor?
I was just diagnosed with “lazy stomach” as the doctor called it. I refuse to take Reglan tho they all keep pushing me to. Mostly, I just live with it, like most of my other woes. A dietitian told me that lemon or vinegar helps taken before meals but I haven’t really tried that. I sometimes take warm lemon water in the morning but to loosen phlegm.
@nanny23.. greetings! I stand corrected.. my neurologist told me that the Neuropathy I have IS referred to as Autoimmune Peripheral Neuropathy.
Darlia
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1 ReactionYou should get tested for the FGFR3 antibody
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