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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Mar 3 5:40pm | Replies (1163)

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Profile picture for Ginger, Volunteer Mentor @gingerw

@carlabaz Welcome to Mayo Clinic Connect. It often can be unsettling to hear a diagnosis, right? I don't know that there are specific timelines for us when moving from one stage of MGUS to SMM to full-blown myeloma. For me, I went from MGUS in 2017, to SMM in 2018, to myeloma in 2019; definitely an overachiever!

What protocols are your medical team advising at this point?
Ginger

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Replies to "@carlabaz Welcome to Mayo Clinic Connect. It often can be unsettling to hear a diagnosis, right?..."

@gingerw
That sure was fast from what I was told would happen. How are doing? Do you have the bone splinters? What are they doing to treat the myeloma currently? I am not tolerant to pain, so that scares me. My next visit with Cancer Center is in April, full labs and 24 hour urine test. I had the Bone Marrow test right after I was diagnosed. My mood has been off lately and she suggested starting treatments early for myeloma in April.