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Ray Kemble avatar

Living with PN, do you find yourself retreating from life?

Neuropathy | Last Active: Mar 5 10:44am | Replies (144)

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Profile picture for Gene Uszaki @gjuszaki

Hi 👋 Ray: I have recently joined this discussion group. Kudos and thanks to Mayo Clinic for hosting these discussion formats.
My name is Gene, 78 years old from PA. Near Philly.
My opinion is that withdrawing is probably the worst thing you can do. Most if not all friends recognize that as we age, we are susceptible to a variety of debilitating issues, so let’s be up front about it. I also recognize that all of us are different life experiments. So it’s fairly unlikely any two Neuropathy cases will be identical. In fact, I m quite certain most of the folks in this forum deal with more than just Neuropathy unfortunately. I personally don’t experience balance issues, but lots of pain walking and going out. Sometimes if we’re out, I may need to rise up from the dinner table and take a walk to prevent from becoming so painful , I can no longer tolerate sitting. Personally, if a friend explained to me that they were in need of balance assistance , I would never hesitate to assist. My recommendation is let your friends know you need help. Get out and stay out as often as you can. Enjoy life as much as you can , in whatever ways are still possible. One day at a time, making sure to push through the challenge of pain.
I hope to see more people respond to posts by others, to make this discussion group as beneficial as possible. If you have any questions related to my response , please feel free to respond in kind.
May God Bless, and keep you moving.
Gene 😁🇺🇸

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Replies to "Hi 👋 Ray: I have recently joined this discussion group. Kudos and thanks to Mayo Clinic..."

Hi, Gene (@gjuszaki)! Welcome to Connect! This reply will be unpardonably short as my workday is not over and I've still a gazillion things to do. (Fortunately, I love my work, so a "gazilion" doesn't faze me. 🙂 ) As you say, to each his own set of neuropathic symptoms. Mine is solely balance. I've had to accommodate on again/off again decent balance for a long, long time, from several years before I was finally diagnosed with chronic idiopathic predominantly large-fiber polyneuropathy. That's a mouthful, I know. I'm glad you found us, Gene. Pull up a comfy chair and settle in. I'm sure in no time you'll be inundated with messages. 🙂 Stay well! Stay strong! Cheers! ––Ray (@ray666)