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Colleen Young, Connect Director avatar

HCM-ers: Introduce yourself or just say hi

Hypertrophic Cardiomyopathy (HCM) | Last Active: 3 hours ago | Replies (1237)
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Profile picture for jbogema @jbogema

@walkinggirl thank you! I developed a heart murmur in 2019, and an irregular heartbeat. My doctor said it was getting worse and I saw a cardiologist who did a number of tests. He said the heart wall was thickening, pushing the valve out of place, and blood was backing up. I noticed fatigue and increased asthma symptoms. If I can’t get Camzyos, it may mean surgery to shave the heart.

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Replies to "@walkinggirl thank you! I developed a heart murmur in 2019, and an irregular heartbeat. My doctor..."
Linda, Volunteer Mentor | @walkinggirl | Feb 24 1:50pm

@jbogema The thickening is exactly what happened with me and many others! Are you a patient at a COE? I think your cardiologist explained it well since you are telling the situation in very easy to understand language. One day and step at a time, you have an encouraging bunch of people with you on this - you are following footsteps. How long do you think it will take for you to find out about Camzyos?

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