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Do I need to deep dive diagnosis?

Posted by debbieod @debbieod, Aug 9, 2025

I like information. Sometimes that is good. Sometimes that just becomes a gathering process.
I have had the Electrical diagnostic test. I was told idiopathic peripheral neuropathy
I read on here— there is not a definitive cure. Many have small successes doing a myriad of different things to lower symptoms.
So is there any reason to go to a bigger and better neurologist ? I did see a young inexperienced neurologist. The dr that did the electric test. Walked in walked out. Sent results.
From what I gather -and what I have read is
the results are the same after many drs and other tests.
Some pain meds.— A few ALA maybe B-12 Magnesium for some. From the doc not much else.
Do I need a biopsy? Or other tests to confirm what I have been told?
Am I over simplifying this ?
Would it make any difference in my outcome - or am I just gathering information?

Interested in more discussions like this? Go to the Neuropathy Support Group.

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Mentor
John, Volunteer Mentor | @johnbishop | Feb 24 10:20am
In reply to @artemis1886 "https://www.foundationforpn.org/stem-cell-treatments-a-real-hope-or-false-promise/ @johnbishop - proteus’s is claiming nerve regeneration What am I missing? There is speculation but..." + (show)
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https://www.foundationforpn.org/stem-cell-treatments-a-real-hope-or-false-promise/
@johnbishop - proteus’s is claiming nerve regeneration
What am I missing? There is speculation but once a nerve is dead it is dead.

There currently is no cure. There is nothing confusing about that. If you took anatomy and physiology in college nerves do not regenerate. They teach you that in college one a nerve is dead how do you regenerate it?
You can’t. You can t bring something to life that is dead.
When heart tissue dies you can’t regenerate it. You can have a heart transplant.
For those of us that have cardiac autonomic neuropathy Aka - can that can’t control our blood pressure and our heart jumps from bradycardia to tachycardia and we pass out my electrophysiologist laughed when he read your post. There is no way to regenerate heart muscle. Neuropathy causes muscle atrophy. So when you get cardiac autonomic neuropathy you are given eight years left to live based on how it progresses. Tell me, cardiologist and electrophysiologist how you are going to regenerate all the hearts out there with neuropathy? How are you going to regenerate all the nerves in people who no longer feel their arms and legs? Wait what about the people that can no longer walk.
My neuropathy is caused by autoimmune not diabetes or being over weight, So tell me since you are telling people there is a cure how do you cure autoimmune diseases that cause neuropathy L

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@artemis1886 - I'm with you on the dead nerve. I've never read any research that a dead nerve can be brought back to life. A compressed or damaged nerve may be a different story and why there are so many so called cures out there. Some treatments do help heal damaged nerves (just my humble non-medical opinion) and surgery may help with a compressed nerve. That's really why I started taking supplements back in 2016 after being diagnosed with idiopathic small fiber PN. I still have neuropathy but my legs and feet feel much better than they did in 2016 when I started but the numbness is still there along with some tingling, just not as bad as it used to be. Lots of research out there on the question "can nerves regenerate" but I don't think there is any consensus - https://scholar.google.com/scholar. (again, just my opinion).

Mayo Clinic has a fairly comprehensive article on the topic that makes it easier for me to understand:
-- Treating, repairing the body's electrical system:
https://www.mayoclinichealthsystem.org/hometown-health/speaking-of-health/treating-repairing-nervous-system

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