I was diagnosed with pulmonary sarcoidosis 30+ years ago. I am now 77. My pulmonologist recently told me my lungs were fibrotic from at the time of initial diagnosis. I was treated with prednisone for several years and finally decided to stop taking it. I was switched to a steroid inhaler at that time as well as a bronchial dilator inhaler. I have been on O2 since being hospitalized for flu/pneumonia in 2012. Because of a change of insurance on Jan. 1, the Symbicort inhaler would no longer be covered so, after checking with my pulmonologist, I stopped using it. My breathing became instantly and substantially more difficult and has stayed that way for 6 weeks now. I am struggling to breathe and to decide whether or not to go back on the steroid inhaler. The decision is complicated by the fact that my cancer is/was partially the result of long term immune suppression caused by the steroids and by the fact that the pelvic radiation used to treat the cancer caused osteoporosis which is exacerbated by steroids. A right heart catheterization several years ago to determine pulmonary hypertension was not definitive, and I am not eager to repeat that test. My extensive research on multiple reputable websites shows fairly clearly that there are no effective treatments for pulmonary hypertension or for fibrotic sarcoidosis so I am flummoxed as to what I can do without triggering a recurrence of the cancer and worsening of the osteoporosis. Has anyone been treated effectively for fibrotic lung disease and, if so, what was the treatment? I appreciate your input.