← Return to HCM-ers: Introduce yourself or just say hi

Discussion
Colleen Young, Connect Director avatar

HCM-ers: Introduce yourself or just say hi

Hypertrophic Cardiomyopathy (HCM) | Last Active: 5 days ago | Replies (1195)
Comment receiving replies
Profile picture for Linda, Volunteer Mentor @walkinggirl

@jbogema Welcome! It sounds like you are going to use Camzyos. Neither Debra, my fellow HCM mentor, nor I have been prescribed that, but many others have. When did you begin experiencing symptoms? Are you a patient at a COE? We are looking forward to your comments. Welcome, again!

Jump to this post

Replies to "@jbogema Welcome! It sounds like you are going to use Camzyos. Neither Debra, my fellow HCM..."
jbogema | @jbogema | Feb 24 12:09pm

@walkinggirl thank you! I developed a heart murmur in 2019, and an irregular heartbeat. My doctor said it was getting worse and I saw a cardiologist who did a number of tests. He said the heart wall was thickening, pushing the valve out of place, and blood was backing up. I noticed fatigue and increased asthma symptoms. If I can’t get Camzyos, it may mean surgery to shave the heart.

VIEW AND REPLY