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Esophagectomy: What is life like Afterwards?

Esophageal Cancer | Last Active: Jun 21 2:27pm | Replies (136)

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Profile picture for manuelo @manuelo

@ajax2026 Hi, Yes my leak healed on its own. They just kept me longer at hospital when they realized it. I was there fourteen days. Last few days they had me eating jello and soft stuff like that but I had to keep feeding tube for a couple of months.

Glad your brother is doing well. Btw I still have a handhell device you have to keep blowing you have to keep inhaling from in order to exercise your lungs. I am sure your brother will get one too. It is great to exercise your lungs.

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Replies to "@ajax2026 Hi, Yes my leak healed on its own. They just kept me longer at hospital..."

@manuelo hello manuelo. its been several days since i wrote. thank you for your help. we ended up not needing to advocate because they kept him longer until he couldnt wait to get home 🙂 I havent seen him since he got home (he's in canada) my sisterinlaw's update is: he gets tired very easily, low stanima and has lost a lot of weight. He has a drain tube but the feeding has been taken out. he has a stent which i believe is in his esophagus, it lets food pass while the leaks heal. he's on two antibiotics. I'll be able to see him soon. I spend the summers there. it will be easier for me to stick my nose in his business 😂 ... it's hard for me sometimes, I need to be sensitive to how they want to handle things. However, in my defense i used to do medical research as a job. I'm good at it, like finding this site... that i havent been able to get him to check out but joking aside the night before the crisis i was in touch with another member here and told him about how much pain my brother was in, this would be about 10 days post surgery. The person said, something's wrong he shouldnt be in that much pain. Its why I tried to get him to call the doctor right away and at least describe where it was coming from. This was on a saturday. He said, he'd call monday morning. His lung collapsed sunday. He'd had his bandages changed at a clinic on friday and was told everything looked great. they went home with a false sense of safety. in anycase he's kept his head above water 💪 its slow but he's getting better. it's been a set back for sure but we're on the right, going forward nit back 🙏🙏🙏it worries me has to do another round of chemo. I've sent him weight gain drinks and a breathing exerciser (i'll have him check with his doctor about using it) its hard not being there... so i can tell everyone what to do 😂😉