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Pulmonary fibrosis worsening. Need info about lung transplant
Transplants | Last Active: Mar 14 2:41pm | Replies (8)Comment receiving replies
Hello, I am a heart/double lung recipient in April 2021. I am doing great and living life to the fullest.
Something that one of my transplant doctors told me was that you want the transplant when you are feeling good because you will have a better outcome post surgery. It’s opposite of what I thought-I should be on my deathbed when I got a transplant. Obviously you have to be sick enough to be elevated on the list. So it’s a bit of a contradiction.
I guess that’s a long way of saying it’s better to start the process early. It takes time and you have to decide where to be listed and even be approved to get on the list.
Hope this helps.
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@jackiez
Hello Jackie
Thank you so much for your response and sharing the information on the process. My pulmonary fibrosis seams to have gotten worse in the last 6 months, any advice is much
Appreciated. I now have lots of questions for my doctor at my next visit. Definitely want to start the conversation about a transplant. I’m very much afraid because I’m 67 and not sure if there’s a cut off age. I’m in good health so hopefully age will not affect the outcome. Thanks again, your sharing this gives me hope.