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lmatherton13 avatar

Mother just diagnosed with follicular lymphoma.

Blood Cancers & Disorders | Last Active: Feb 26 9:29am | Replies (13)
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Profile picture for jscavar77 @jscavar77

I was DX at 34 which was nearly ten year ago. I have stage 4 and I have had 4 relapses, I have done over 60 chemo, immunotherapy infusions over 7 years. I get scanned every 6 months now. I am watching again right now and they didnt think I would make it couple of years. I had two babies at the time of my dx now in high school and middle school. I have a lot of info to share if you or your mom or anyone here needs. I am always happy to share all the things that have helped me. Best of luck to your mother and each of you. JC

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Replies to "I was DX at 34 which was nearly ten year ago. I have stage 4 and..."
Lori, Volunteer Mentor | @loribmt | Feb 23 8:47am

@jscavar77 Hi JC, Oh my goodness, you’ve gone through so much over the past 10 years since your diagnosis of follicular lymphoma (FL). I can’t imagine the challenges of 60 rounds of chemo/infusions while raising two babies and trying to keep a household running smoothly. I’m sure this continually weighs heavily on your mind. But you’ve certainly shown your family and medical team that you have an indomitable spirit of endurance! Your resilience and determination is incredibly inspiring.
Thank you for offering to share your experiences to help others along their FL journey. I hope that you’ll be a regular visitor now that you’ve popped into the conversation. We’re a very supportive group of friends. ☺️

What were the immunotherapy infusions you received?

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