Al amyloidosis treatment after 6 years of remission

I have multiple myeloma and amyloidosis. My treatment for this was 4 drugs - Daratumumab, Dexamethasone, Cytoxan, and Velcade. These were very strong drugs and the 6 months of treatment was hell. You are only taking 2 of the drugs so will not have the same affects I did with 4 drugs. Some of the side effects were diarhhea, increased appetite, taste buds screwed up, and hearing problems. Also very tired and weak. Be sure you have diarhhea medication on hand if case you need it. When I was too weak to walk to bathroom, my daughter used my office chair to roll me over to the toilet. Also got neuropathy from treatment. Chicken broth is good to drink if you have taste bud problems. Everyone I talked to say that was the only thing that tasted good. Currently I am on monthly daratumumab and take benadryl and tylenol before I get my shot. I am 85.

Hi @paotired. Just checking in with you to see if you’ve started your treatments for the relapsing Al Amyloidosis. I hope you’re responding well to the regimen of meds. How are you feeling?