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One of the biggest problems in diagnosing Parkinson's and other neurodegenerative diseases is the commonality of symptoms with a variety of diseases - including age related decline in function. I'm a retired Acute Care NP and looking back I had symptoms of neurodegenerative disease for years before putting all the pieces of the puzzle together. For instance - bad dreams with some acting out of dreams was attributed to work and personal stress; slow gut with GERD and irregularity attributed to irritable bowel syndrome; being unable to smell the turkey cooking at TG and not being able to smell a pot of barbecue simmering attributed to "just getting older. I never even mentioned these problems to my PCP until I read about REM Sleep Behavior Disorder - while investigating my bad dreams. That explained my violent outbursts and hitting my husband in my sleep - ABNORMAL and indicative of future development of Parkinson's or a like disease. I also suffered from bouts of near fainting in the heat - again attributed to dehydration and advancing age. Then I started investigating the other symptoms of PD and was increasingly concerned that I fit the profile and got a referral to a neurologist with Movement Disorder training who confirmed a diagnosis of Primary Autonomic Nervous System Failure and likely early PD. On meds to treat low BP and help with gut issues - otherwise monitoring and trying to exercise regularly as recommended.

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Replies to "One of the biggest problems in diagnosing Parkinson's and other neurodegenerative diseases is the commonality of..."

@bmfoster My 82 year old mother has had many if not all of those same symptoms and was diagnosed by her geriatric doctor with Lewy Body Dementia. If you don’t mind me asking, do you know how different is that from your diagnosis?