Decided not to have treatment for adenocarcinoma in both lungs.

Thanks for your answer. I have lung cancer but have metastasis. I’m glad your doing so well and living life on your own terms.

I was diagnosed with adenocarcinoma right before Christmas 2025. I have mets to the bone (skull) and brain. I had one radiation treatment on NYE and it reduced the pain and size of the bump on my head rather quickly. I also have had 3 rounds of chemo. My side effects have been minimal and controllable with medication and rest. I wouldn't wish this on anyone! I have 3 more rounds of chemo and take tagrisso daily 80 mg.

Sounds tough . . . Radiotherapy and
chemo too. I just made my living will, saying I only want palliative care
if I am unable to speak for myself. I wonder if I should, have a tattoo
that says 'Don't resuscitate'? (Joke) I have been so lucky so far. There is
no fairness in this illness. It goes to whoever and where ever it wants.
Hole you have some luck too.

Hope

I’m just feeling my way through this so please realize that there’s no judgment on my part whatsoever when it comes to making decisions about fighting back or letting God decide for us. I’ve mentioned earlier that I don’t think I can go any further if the cancer has returned, I’m processing my thoughts and I will know next week if cancer has returned, I can’t have anymore surgery, chemo is a definite no and I’m not sure about radiation. I feel that making a decision to forgo treatment depends on many things, i.e., age, what stage you’re at, religious beliefs and mental outlook on your life. When you’re older your family doesn’t need you as much, your health and ability to withstand treatment is a huge factor and if you are blessed to have had a good life and feel satisfied with your accomplishments, lastly your fear of death. I didn’t live my best life, I had early detection and though surgery was a lot to handle, I was cancer free and gradually recovered but I struggle with the mental aspect of life with this disease, this has worn me out the most, I’ve read so many stories about individual experiences and even though I share some experiences with others the journey is always very individual to be sure. It’s always very interesting to hear how people feel and how they cope and I suppose that helps because no matter how you choose what course you take we are all connected as human beings trying to survive.

@bgayle About the tattoo joke… I don’t know what state you live in, but in a number of states there is a document called a POLST. We have it in CA. It’s a one page instruction to medical personnel to indicate if you want DNR or not but also includes a statement about hospitalization or comfort care. It has to be signed by a doctor (or medical professional). You keep the document with you. It’s a real way to avoid CPR if you don’t want it. Your doctor can help you with it if available in your state, or palliative care or hospice care would have it too. It doesn’t replace the advanced directive, you can have both.

@bgayle I had the EGFR genetic mutation. The oncologist says it's a crapshoot who gets the genetic mutations. No history of cancer in my family. My mom had breast cancer in her late '50's and was declared "cured" by 1990 and lived 20 more years. I had been up to date on gyn visits and mammograms.
My first reaction was do nothing, but doctor said I'd have 6-9 months. I have famiy and friends who love me, so I'm fighting. Don't give up too soon. I've heard of people on tagrisso or other targeted therapy for many (7+) years!

@frouke You're right. I think the mental aspects and the reality of your mortality plays a big role, especially just after diagnosis. It takes a long time to sink in. I keep thinking it's all a dream and I'll wake up and not have cancer. My husband has been helpful, too. I don't know how I would've done any of this without him.

@medtech4 , I'm also very blessed with the love and support from my best friend and partner, thank God

@frouke It really helps to have support from your significant other.