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Chronic Myeloid Leukemia now Myelofibrosis: Anyone had both?
Blood Cancers & Disorders | Last Active: May 22 8:02pm | Replies (13)Comment receiving replies
Hi @winniegirl Welcome to Mayo Clinic Connect. It can feel pretty lonely with an uncommon diagnosis. So I’m very happy you joined Connect. This is a great place to come for support!
Both CML and MF belong to a group of blood cancers/conditons called myeloproliferative neoplasms (MPNs). There are several conditions associated with MPNs and sometimes, from my understanding, they can run concurrently. But they may require different forms of treatment.
Has your doctor discussed a potential treatment plan for you?
Replies to "Hi @winniegirl Welcome to Mayo Clinic Connect. It can feel pretty lonely with an uncommon diagnosis...."
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@loribmt He just said you are likely to live 10 years. I then saw a Myelofibrosis specialist and she wanted to put me in a trial but they did not accept me because of the CML. She suggested Jakafi and my hematologist is putting me on it, he issued the prescription for prior approval and said to give it about a week. My CML is now in remission.