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danakpeters75 avatar

CT myelogram & embolization for CSF leak experiences?

Spine Health | Last Active: Feb 22 3:02pm | Replies (2)
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Profile picture for vijay26 @vijay26

Q: Where do you have the CSF leaks?

I have it in my nostrils, eyes and ears!

I have to know the answers that you are seeking too!
You wrote it so well.

Please help us. Thank you all.
VJ

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Replies to "Q: Where do you have the CSF leaks? I have it in my nostrils, eyes and..."
danakpeters75 | @danakpeters75 | Feb 22 3:02pm

@vijay26
Hi VJ,

Thank you so much for your kind words — I really appreciate it!

In terms of the leak location, the doctors suspect it’s in my lower spine as a venous fistula, but the exact spot hasn’t been confirmed yet. That’s what the upcoming CT myelogram in May is going to help determine.

I’m really hoping that once they find the precise location, the treatment can fix it, and I’m looking forward to learning more about what recovery looks like for others.

Thanks again for reaching out!

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