@carolgk Hi Carol, You have a bit of an adventure ahead with the upcoming allo-stem cell transplant, also referred to as a bone marrow transplant (BMT). You’ll learn more as you meet the transplant doctor and their team next week.

After that meeting, I know from experience, you’re going to have a ton of questions. It can be incredibly helpful and comforting to be able to talk with others who have walked this same path! There are a growing number of us who have also had a BMT for various blood related cancers, including myelofibrosis, MDS, CMML, AML, etc.. So we know what it’s like to be overwhelmed with the information along with the logistics of making it happen. But it’s so worth the effort to be given a 2nd chance at life.

Many of us have shared our journeys in this discussion I started several years ago. It’s still relevant as we just keep adding to it!

~My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?
https://connect.mayoclinic.org/discussion/my-bone-marrow-transplant-bmt-story-will-you-share-yours/
Another helpful discussion is this list of resources for allogeneic bone marrow transplant information:
Resources: https://connect.mayoclinic.org/discussion/bone-marrowstem-cell-transplant-informational-websites/

You are already heading to a transplant, so that may be your main focus now…but I thought you might be interested in speaking with other CMML and Myelofibrosis (MF) members as well. Here are the results of both of those searches:
CMML. https://connect.mayoclinic.org/search/

MF https://connect.mayoclinic.org/search/

I’ve given you a lot of information to start with. As you get closer to your transplant, please don’t hesitate to post questions or concerns in this discussion (same as above) https://connect.mayoclinic.org/discussion/my-bone-marrow-transplant-bmt-story-will-you-share-yours/

That way fellow BMT peeps will be right there to answer your questions from everything to ‘what to pack for a long hosptial stay’ to what it’s like every step of the way.
Are you near your transplant center or will you have to relocate?