I have similar numbness in feet and sometimes lower legs. Likely due to nerve damage from being pre-diabetic. Left foot is better than the right. Sometimes my feet are like ice blocks. Not much in the way of pain tho. Sometimes my slippers or Sorel boots makes the toes in my right foot ache. I take PreGabalin which controls itching in my legs and elsewhere. My feet aren't constantly numb, but I don't think that any of my meds are helping numbness however. It seems that every malady that I have is complicated by something else.
John, Volunteer Mentor | @johnbishop | Feb 21 7:10am
Hello @tedkaplysh, I would like to add my welcome to Connect along with @bajjerfan and others. I also have only numbness and some tingling with my neuropathy but no real pain. I shared my neuropathy journey in another discussion here - https://connect.mayoclinic.org/comment/310341/.
Hello @tedkaplysh, I would like to add my welcome to Connect along with @bajjerfan and others. I also have only numbness and some tingling with my neuropathy but no real pain. I shared my neuropathy journey in another discussion here - https://connect.mayoclinic.org/comment/310341/.
I have similar numbness in feet and sometimes lower legs. Likely due to nerve damage from being pre-diabetic. Left foot is better than the right. Sometimes my feet are like ice blocks. Not much in the way of pain tho. Sometimes my slippers or Sorel boots makes the toes in my right foot ache. I take PreGabalin which controls itching in my legs and elsewhere. My feet aren't constantly numb, but I don't think that any of my meds are helping numbness however. It seems that every malady that I have is complicated by something else.
I don't recall ever being told why there was numbness, only that the tests indicated nerve damage. As I recovered from my spine surgery I could move my left foot freely and wiggle my big toe. I can move my right foot decently, but can't wiggle my big toe very well.
Hi,
I have been taking B12 for thirteen years and managed to get my B12 back into the desirable range from being below the minimum target, I have not noticed any benefit to my nerves. B12 is supposed to support healthy nerve cells, among other things. Neuropathy is unhealthy nerves cells! I don't know that you can fix what is broke, just slow down the progression or arrest it at best. I have read cells replace themselves in 7 years cycles and can say I have grown nerves back into a finger where I had the nerves ground out, by accident, so who knows.
It is very difficult to know if it is getting better or am I just getting used to it and getting on with life.
In the last 6 months I have had my neuropathy in the feet esculate up to the knees and gotten more pronounced. I don't have much pain just some sharpe jabs periodically which dissapate immediately and horrendous leg cramps, mostly at night. I notice some days the neuropathy is in the hands making me fumble everything I touch.
There are many causes for periferal neuropthy, I was unaware that being pre diabetic was one. We live and learn.
Cheers
Hi,
I have been taking B12 for thirteen years and managed to get my B12 back into the desirable range from being below the minimum target, I have not noticed any benefit to my nerves. B12 is supposed to support healthy nerve cells, among other things. Neuropathy is unhealthy nerves cells! I don't know that you can fix what is broke, just slow down the progression or arrest it at best. I have read cells replace themselves in 7 years cycles and can say I have grown nerves back into a finger where I had the nerves ground out, by accident, so who knows.
It is very difficult to know if it is getting better or am I just getting used to it and getting on with life.
In the last 6 months I have had my neuropathy in the feet esculate up to the knees and gotten more pronounced. I don't have much pain just some sharpe jabs periodically which dissapate immediately and horrendous leg cramps, mostly at night. I notice some days the neuropathy is in the hands making me fumble everything I touch.
There are many causes for periferal neuropthy, I was unaware that being pre diabetic was one. We live and learn.
Cheers
I was told by an internist and a neurologist that the cause of my peripheral neuropathy was idiopathic. The internist speculated as to the cause, the neurologist rejected the speculation. The cause does not seem to matter. Neither one said that the nerves lost could be regenerated. The internist prescribed B-6, Folate and B-12 and later admitted that was to possibly eliminate further deterioration of the condition. The neurologist offered nothing and then retired. So, I am left to deal with the repercussions e.g. I have found a pair of shoes that give me significant stability and I wear them daily. I also exercise on an eliptical machine, a recumbent bike and walk the neighborhood. Messaging my feet and legs with a Hyperice feels good but does not remove the numbness. Exercises for balance also helps to hopefully prevent falling.
I was told by an internist and a neurologist that the cause of my peripheral neuropathy was idiopathic. The internist speculated as to the cause, the neurologist rejected the speculation. The cause does not seem to matter. Neither one said that the nerves lost could be regenerated. The internist prescribed B-6, Folate and B-12 and later admitted that was to possibly eliminate further deterioration of the condition. The neurologist offered nothing and then retired. So, I am left to deal with the repercussions e.g. I have found a pair of shoes that give me significant stability and I wear them daily. I also exercise on an eliptical machine, a recumbent bike and walk the neighborhood. Messaging my feet and legs with a Hyperice feels good but does not remove the numbness. Exercises for balance also helps to hopefully prevent falling.
@tedkaplysh
Hi,
Having Autonomic polyneuropathy and diabetic neuropathy I get no support other than the walking stick I have to use on bad days. I have yet to figure out what is triggering the bouts of disconnect from the waist down with moments temporary paralysis. To my simple mind it seems to be the autonomic nerve has bouts of doubt not transmitting the signals to or from the muscles to do what comes naturally without thought. being left to my own devices I push my body to the limits and won't give in to it all. I keep my mind focused on what I'm trying to do and try not to think about what the body is trying to do to me. I'm now experiencing numbness in the fingers, something else to cope with and push through in my never ending adventures of life.
I find it amazing how the body copes with the trials and tribulations ever adapting to get the best out of life.
Cheers
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I have similar numbness in feet and sometimes lower legs. Likely due to nerve damage from being pre-diabetic. Left foot is better than the right. Sometimes my feet are like ice blocks. Not much in the way of pain tho. Sometimes my slippers or Sorel boots makes the toes in my right foot ache. I take PreGabalin which controls itching in my legs and elsewhere. My feet aren't constantly numb, but I don't think that any of my meds are helping numbness however. It seems that every malady that I have is complicated by something else.
Hello @tedkaplysh, I would like to add my welcome to Connect along with @bajjerfan and others. I also have only numbness and some tingling with my neuropathy but no real pain. I shared my neuropathy journey in another discussion here - https://connect.mayoclinic.org/comment/310341/.
I don't think there are any cures out there for neuropathy numbness but all of us affected keep searching and hoping to find something. There is another discussion on the same topic here:
-- Neuropathy: Numbness only, no pain
https://connect.mayoclinic.org/discussion/neuropathy-numbness-only-no-pain/
The Foundation for Peripheral Neuropathy has a list of supplements that have shown to help people with neuropathy - https://www.foundationforpn.org/vitamins-and-supplements-for-nerve-health/
Have you done any research on the different supplements that help with nerve health?
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1 ReactionI take B12 methylcobalamin, but never noticed any healing of any nerves in my lower legs. No change after being on it for more than a year.
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1 ReactionI have been taking B-6, Folate and B-12 for years with no reduction in the numbness. Perhaps they have slowed down the progression.
@johnbishop
Agree probably no cure. No way to regenerate the lost nerves?
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1 Reaction@bajjerfan
Is the numbness cause by dead nerves? If so, they cannot be regenerated?
@tedkaplysh
I don't recall ever being told why there was numbness, only that the tests indicated nerve damage. As I recovered from my spine surgery I could move my left foot freely and wiggle my big toe. I can move my right foot decently, but can't wiggle my big toe very well.
Hi,
I have been taking B12 for thirteen years and managed to get my B12 back into the desirable range from being below the minimum target, I have not noticed any benefit to my nerves. B12 is supposed to support healthy nerve cells, among other things. Neuropathy is unhealthy nerves cells! I don't know that you can fix what is broke, just slow down the progression or arrest it at best. I have read cells replace themselves in 7 years cycles and can say I have grown nerves back into a finger where I had the nerves ground out, by accident, so who knows.
It is very difficult to know if it is getting better or am I just getting used to it and getting on with life.
In the last 6 months I have had my neuropathy in the feet esculate up to the knees and gotten more pronounced. I don't have much pain just some sharpe jabs periodically which dissapate immediately and horrendous leg cramps, mostly at night. I notice some days the neuropathy is in the hands making me fumble everything I touch.
There are many causes for periferal neuropthy, I was unaware that being pre diabetic was one. We live and learn.
Cheers
@cheyne
I was told by an internist and a neurologist that the cause of my peripheral neuropathy was idiopathic. The internist speculated as to the cause, the neurologist rejected the speculation. The cause does not seem to matter. Neither one said that the nerves lost could be regenerated. The internist prescribed B-6, Folate and B-12 and later admitted that was to possibly eliminate further deterioration of the condition. The neurologist offered nothing and then retired. So, I am left to deal with the repercussions e.g. I have found a pair of shoes that give me significant stability and I wear them daily. I also exercise on an eliptical machine, a recumbent bike and walk the neighborhood. Messaging my feet and legs with a Hyperice feels good but does not remove the numbness. Exercises for balance also helps to hopefully prevent falling.
-
Like -
Helpful -
Hug
1 Reaction@tedkaplysh
Hi,
Having Autonomic polyneuropathy and diabetic neuropathy I get no support other than the walking stick I have to use on bad days. I have yet to figure out what is triggering the bouts of disconnect from the waist down with moments temporary paralysis. To my simple mind it seems to be the autonomic nerve has bouts of doubt not transmitting the signals to or from the muscles to do what comes naturally without thought. being left to my own devices I push my body to the limits and won't give in to it all. I keep my mind focused on what I'm trying to do and try not to think about what the body is trying to do to me. I'm now experiencing numbness in the fingers, something else to cope with and push through in my never ending adventures of life.
I find it amazing how the body copes with the trials and tribulations ever adapting to get the best out of life.
Cheers